Morning hugs denise I think is a good combo๐
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I thought it was just me that did this ๐คฃ๐คฃ๐คฃ๐คฃOriginally posted by denise View Post
Foxes Never Quit ๐Comment
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Good afternoon fellow commoners and royalty ๐๐
Yep, those selfish birds wake us up at an unearthly hour just for fun, then, once we're wide awake, they snuggle down in their nests to sleep for another few hours ๐
We, on the other hand, tut tut and say... well, I'm awake now, may as well get up ๐คฃ๐คฃโDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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โYep, those selfish birds wake us up at an unearthly hour just for fun, then, once we're wide awake, they snuggle down in their nests to sleep for another few hours โ
๐คฃ๐คฃ so true! XDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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๐ฒ Who'd have thunk - I am first ๐๐๐๐๐โDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Wow Ellie Did you fall out of bed?Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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I hadn't been to bed Eddie - I'm at Glasto ๐ถ๐ถ๐ถ๐ช๐๐ Or was it all but a dream ๐คญ๐๐Originally posted by WheelsOfSteel View PostโDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Morning everyone xxxxwhen i can think of something profound i will update this.Comment
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Good Morning and Hey Nonny Nonny to one and all.
I was in the garden of a Manor House last night watching an open air performance of A Midsummer Nights Dream.
I had the best seat in the house in my powerchair
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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WheelsOfSteel wow sounds an excellent night.
I was up at 5am. wash bedding day and paint testing a wall. Wow living the dream...not ๐คชDiagnosed May 2021 bulbar onset als.Comment
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Morning, I was woken up by the squeeking of a shrew the cats had very kindly brought into my bedroom/dining room.
Thankfully my son had not yet left for school, so he had the job of catching it and return it to the garden. Thank goodness for Pringle tubes, they are the best thing for catching mice!Started limping 2017, diagnosed August 2021. Powered wheelchair user, transferred with standaid hoist. No shoulder movement, reduced hand function and speech starting to slur. Trying to be positive ๐บ.Comment
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Good afternoon one and all ๐๐
Beer and curry after work, anyone ??โDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by WheelsOfSteel View Post
Blackadder says "Don't say tush either. Itโs a short step from tush to hey nonny nonny and then I shall have to call the police."โDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I'd have gone for beer and curry. How about beer and curry for breakfast? ๐when i can think of something profound i will update this.Comment
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Beer and curry after work was fun, but now for breakfast my stomach screams nooooooo!Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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