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    Ok, thanks Linda x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      I'll look for it in my library (Crawdads one). I would love to have time to read (or listen) more, but at the moment my limited energies are going elsewhere (eg where to go for 4 weeks from October 11th whilst my adaptations are done). When I'm further immobilised and with carers, I imagine I will have more time. Also, just reading a book written by my niece (which the mnda would probably censor me mentioning!). Anyhow someone has given me Kate Grenville's "A room made of leaves", don't know at all if that's anybody's cuppa? I am appreciating recommendations from others though, thanks xx
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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        Heather R 'A room made of leaves' is in my library and it's historical fiction so ok with me. Let's see what others thinkπŸ€”& if accessible for all go for itπŸ‘
        How lovely to have a niece who's a published author....I don't think anyone could object to your mentioning....πŸ€·πŸΌβ€β™€οΈ
        That's tricky thinking about 4 weeks out of your home even though good to get adaptations done....πŸ™

        I too am enjoying reading books recommended by others πŸ‘πŸ˜‰x
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          Originally posted by Heather R View Post
          Also, just reading a book written by my niece (which the mnda would probably censor me mentioning!).
          I don't you need worry on that front, Heather - you're not exactly engaging in spurious advertising. Well done your niece!!

          I'm interested in A Room Made of Leaves too. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            I've just finished American dirt this afternoon..was so engrossed I missed my siesta! πŸ’€ 😴

            No spoilers but I cried from the time she went to the bank. I loved it but am ready to read something warm and fluffy next πŸ€—. I like the Amazon quick reads .some are free on unlimited and I'll have a look at A room made of leaves.

            Oh Heather, I hope you sort out somewhere to go whilst your house adaptations are being done.. it will be worth it.!

            Love Debbie x

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              Originally posted by Deb View Post
              No spoilers but I cried from the time she went to the bank.
              Hah! I welled up at that too. It was so well written that I felt I was in the room with them πŸ₯°
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                the crawdads. its about a family that fall on bad times. they move to a hut surrounded by swamps. the family breaks up due to the fathers drinking. one poor little soul is left to fend for herself. its sad in places. she makes her way in life, helped by a few but alienated by villagers and accused of murder. its lovely to listen to. its available on youtube in useful one hour segments and so well read you cant stop listening.
                when i can think of something profound i will update this.

                Comment


                  Originally posted by denise View Post
                  the crawdads. its about a family that fall on bad times. they move to a hut surrounded by swamps. the family breaks up due to the fathers drinking. one poor little soul is left to fend for herself. its sad in places. she makes her way in life, helped by a few but alienated by villagers and accused of murder. its lovely to listen to. its available on youtube in useful one hour segments and so well read you cant stop listening.
                  Lynne K Denise has summarised πŸ‘ thanks denise
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                  Comment


                    Thanks Linda and Denise but not up my street, Lynne x
                    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                    I'm staying positive and taking each day as it comes.

                    Comment


                      Lynne K - Heather has suggested A Room Made of Leaves.... Kate Grenville. It's historical fiction.
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                      Comment


                        I’ll look into that Linda, thanks x
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

                        Comment


                          Im listening to: the girl in the picture on YouTube. Will look see if I can get the leafy one. 😁
                          when i can think of something profound i will update this.

                          Comment


                            Well I'm really behind with American Dirt. Ordered it from Abe books, have been waiting and waiting......asked Abe books where it is, they've given me refund so back to square one! Have read A room made of leaves, which I quite enjoyed, but although I know it is a historical story I find it hard reading about colonial times. x
                            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                            Comment


                              Heather you can get American Dirt from Amazon either kindle, audio or paperback. Love Lynne
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

                              Comment


                                Originally posted by Heather R View Post
                                Well I'm really behind with American Dirt. Ordered it from Abe books, have been waiting and waiting......asked Abe books where it is, they've given me refund so back to square one! Have read A room made of leaves, which I quite enjoyed, but although I know it is a historical story I find it hard reading about colonial times. x
                                I got the audible version of A Room Made of Leaves via my library....about to start it. Could American Dirt be available through your library - if you're a member?
                                I use Borrow Box which is free and links into your library account. πŸ‘
                                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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