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Audio Book Club πŸ“–πŸ“–πŸ“–

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    I am about one third into A Room Made of Leaves: I found it slow to start, then I was, Ooh Heather R this is a bit saucy πŸ˜‰πŸ˜‰ and then the storyline developed and I'm quite enjoying it.

    I wouldn't have chosen it myself so, thank you Heather for suggesting it, that's what a book club is all about. 😘😘
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      I'm missing a saucy book, typical. Had a week with our son here so not much chance to listen then last week was horrendous waiting for a lot of GP surgery calls , trying to photograph the sole of my foot because its swollen, trying to do an asthma assessment by phone and then Stephen's multidisciplinary on Friday. All I can say is Stephen wanted transport to the hospital to go to McDonald's and I think that might have been more user friendly. 😩
      when i can think of something profound i will update this.

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        I've lagged behind on A Room Made of Leaves....hope to catch up this week.
        I'm thinking matthew55 might be next in line to choose a book for us in October?
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          I'd be honoured βœ”οΈxx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            Should be interesting
            when i can think of something profound i will update this.

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              Originally posted by matthew55 View Post
              I'd be honoured
              πŸ‘ Can't wait xx

              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                Originally posted by Ellie View Post
                πŸ‘ Can't wait xx
                Me neither matthew55 I have Amazon ready for your recommendation x

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                  Probably a daft question but can I pick a book that isn't on audible?
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    Originally posted by matthew55 View Post
                    Probably a daft question but can I pick a book that isn't on audible?
                    You can but it won't be accessible to everybody. xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      Okay well it's a little early but Simon Scarrow 'Under the Eagle' if it's too expensive I'll pick again. πŸ‘πŸ˜πŸ˜˜πŸ˜xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        Just got American Dirt from library , so will catch you all up eventually x
                        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                          Originally posted by Heather R View Post
                          Just got American Dirt from library , so will catch you all up eventually x
                          Great stuff Heather, enjoy! xx

                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            Originally posted by matthew55 View Post
                            Probably a daft question but can I pick a book that isn't on audible?
                            Ideally it's accessible in both formats an audio version and e version. Also ideally free to access.
                            I'll check my library for Under the Eagle. Thanks MatthewπŸ‘πŸ€“
                            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                            Comment


                              Originally posted by Heather R View Post
                              Just got American Dirt from library , so will catch you all up eventually x
                              I really enjoyed this book....hope you do too. πŸ“šπŸ‘
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                              Comment


                                Under The Eagle audiobook not stocked by my library/BorrowBox. xx
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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