Originally posted by denise
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It doesn't on the 'real' version either, just lists chapters 1-58. xx
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โComment
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I'm only on chapter 5 ๐ฎInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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HI
Just got Audible at last for Thomas
He likes fact books, the great thing is they are around 13 to 18 hours
Have read a few of the Bosch books (physical ones) myself
He listens to pod casts on you tube too
Carer to husband diagnosed MND July 2021
Balance onset and arms
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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DeeH Well, you walked yourself into that, Donna ๐๐ - do you fancy winding down of an evening with Pachinko?
In case you don't know: you can have Audible on your own device too and download your own books - > 1 user can listen to different books, on different devices.
You may not want to read/listen to this book, but you're more than welcome to join us at a later stage.
Some of us also use the library to borrow audiobooks and ebooks. xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โComment
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Hi Linda and all, have only just found your thread. Pachinko is not in my library, but found it in youtube, so will give it a go, and join you if still open for more! xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Fantastic Heather, Linda will be pleased! ๐๐ xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โComment
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The more the merrier ๐๐๐Originally posted by Heather R View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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No WiFi on the patio of our holiday cabin so I read 7 chapters of the book instead this afternoon. Rather good. Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Ellie
Not sure what I walked into (middle of book discussion perhaps)
BUT I didn't know I could have different users on same account on Audible.
That is so good to know.
No time to read at moment, maybe moving. Packing boxes again.
Love talking about books
Cheers Donna
Carer to husband diagnosed MND July 2021
Balance onset and arms
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Last edited by LindaB; 9 July 2021, 10:34.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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He's got to read the book as wellwhen i can think of something profound i will update this.Comment
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Correct ๐ท๐ธ๐น๐Originally posted by denise View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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I promise to read it next week. After everything that's happened I'm still playing catch-up ๐๐๐คญ๐xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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matthew55 I'll stock up the virtual bar now๐ท๐ธ๐น๐บ๐Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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