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    A bit like Jack & the Beanstalk in reverse xx
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      My cleaner is coming back! She disappeared for ages and I'm so happy she's back. The fact that she's a ten is a factor I'll admit, not that I can do anything anymore. πŸ˜‰πŸ˜πŸ€—πŸ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        Originally posted by matthew55 View Post
        My cleaner is coming back! She disappeared for ages and I'm so happy she's back.
        Great news. More company for you too and she can give you bits of gossip (from her time inside πŸ˜‰πŸ˜πŸ˜) 😘

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          I feel young again! πŸ˜‰πŸ˜πŸ˜ƒπŸ˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            Just had a wonderful body wash by a beautiful young lady. It's times like that I actually grateful for my disability. πŸ˜‰πŸ€—πŸ˜πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              There are perks! Xx
              Diagnosed July 2020, ALS bulbar onset.

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                "Perk" being the operative word πŸ˜‰πŸ˜˜
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  I haven't been like it for a good long time. I'm just releived it still works! πŸ˜‰πŸ€—πŸ˜πŸ§xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    Sometimes I read the postings on here and they've completely changed from the original heading. I have to keep going back to keep up. I mean they can be taken out of context or not. Might be because it's 2am and I've lost touch with reality 😱 sleep where are you?
                    when i can think of something profound i will update this.

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                      Relax and remain calm Denise, it's like this on this forum. It's one of the reasons I love it so. πŸ˜πŸ˜‰πŸ€—πŸ˜xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        We made it back home in one piece.( always a relief !) ✈

                        Its lovely to see the πŸ‚ autumn colours and I'm just sitting in my riser recliner watching the squirrels on the lawn. Even more special to see the family after seven weeks. Our baby grandson was unsure of us at first but after a bit of hair pulling.( him not us !) he was fine. He's old enough to enjoy riding on my powerchair but not to steer it !

                        Hugs to all xπŸ˜˜πŸ€—

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                          Glad you both made it back without any drama Deb

                          Time to get reacquainted with your little grandson - enjoy πŸ‘ΆπŸ‘©β€πŸ¦Ό 😘😘
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            Deb Aww glad you’ve had a lovely holiday ​​​​​​ ❀️
                            Janette x

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                              Deb welcome back so glad you've had a great break in the sun. Home sweet home πŸ’–
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                                Deb best homecoming wishes from me too. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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