Announcement

Collapse
No announcement yet.

Reason to be cheerful πŸ’“πŸ’

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Heather R wow now that's a view worth having 😍
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

    Comment


      Good stuff Heather xx

      Comment


        Originally posted by Heather R View Post
        This week I have been lucky enough to have a seaview front my bedroom window, lucky me x
        Are you sure you want to go home Heather R πŸ˜‰πŸ˜˜πŸ˜˜
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

        Comment


          If I was a millionaire I could stay here! X
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

          Comment


            Originally posted by Heather R View Post
            If I was a millionaire I could stay here! X
            You have something more valuable than a million pounds Heather - friendship 😊πŸ₯°
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

            Comment


              What a beautiful view to wake up to Heather R . Gorgeous xπŸ˜˜πŸ€—

              Comment


                Originally posted by Heather R View Post
                This week I have been lucky enough to have a seaview front my bedroom window, lucky me x
                What part of the world is is Heather R ?
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                Comment


                  Scarborough
                  Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                  Comment


                    Looks amazing Heather R 😍
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                    Comment


                      Went to Scarborough 40 years ago. Always meant to go back. Xxx
                      when i can think of something profound i will update this.

                      Comment


                        Originally posted by denise View Post
                        Went to Scarborough 40 years ago. Always meant to go back. Xxx
                        To apologise?

                        Richard

                        Comment


                          Heather R Morning Heather. What a wonderful view. Is the accommodation an hotel and is it accessible?

                          Richard
                          Richard

                          Comment


                            Oh very funny Richard. Dont judge others on your own experiences 🀣
                            when i can think of something profound i will update this.

                            Comment


                              My central heating works, whether I can afford to run it is the Elephant. πŸ˜‰πŸ€—πŸ˜πŸ˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                              Comment


                                That was one thing about wood fires you have to pay up front. Not much fun carrying it up the stairs and then sharing the room with any wildlife that came up on the wood. 😳
                                when i can think of something profound i will update this.

                                Comment

                                Working...
                                X