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Reason to be cheerful πŸ’“πŸ’

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    Good morning,
    well I chose not to take lorazepam last night.I slept my usual pattern of waking 2/3 times for sips of water for dry mouth.Woke at 7,30 today and feel bright.Yesterday I ended up having a duvet day and no energy.
    Transfers manageable so far this morning.

    Sun is shining so feel I need some fresh air….
    Enjoy the day forum members.
    best wishes
    Mary

    Comment


      Morning Mary C sounds a better morning for you...enjoy your fresh air. Sun is glorious 🌞🌞🌞xx
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

      Comment


        Originally posted by Mary C View Post
        Transfers manageable so far this morning.
        πŸ‘πŸ‘ Good to hear Mary.

        I think there is a strong reason to suspect side effects from Lorazepam zonked you yesterday. That's not to say don't ever use it, maybe at a different dose or for a different symptom, it will prove invaluable in the future.

        Enjoy your day. xx

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

        Comment


          Good afternoon Ellie
          well after a positive start this morning I started heaving and got the trots.Palliative nurse thinks it’s side affect of flucloxicillin which I had just started and lorazepam.Whatever it is it left me feeling horrible .Thank goodness I finally have a shower chair that fits over bio bidetπŸ˜‚and a hubby that’s happy to help me transfer .What a .blessing
          Oh well a duvet day for me watching TV .
          Best wishes
          Mary x

          Comment


            Oh no Mary. You had such positive start ! I do hope you feel better soon .

            Having a bit of a duvet day too ! My hubby helps me transfer but he has a bad shoulder so we're trying to minimise transfers. ( easier said than done !) im watching the squirrels in the snow and I think he has football planned to watch.

            Hope you feel better as the day goes on,
            Love Debbie xπŸ˜˜πŸ€—

            Comment


              Originally posted by Mary C View Post
              I finally have a shower chair that fits over bio bidet
              Oh Mary, that's marvelous news, I'm so happy for you - definitely a Reason to be Cheerful πŸ’–πŸ’

              Do you know the name of the chair or was it made for you? xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

              Comment


                Originally posted by Deb View Post
                My hubby helps me transfer but he has a bad shoulder so we're trying to minimise transfers.
                Now Debbie, did you really think you'd slip that one by me??

                What is lurking in the spare room just waiting for such a day 🀣🀣🀣😘
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

                Comment


                  Originally posted by Ellie View Post
                  Now Debbie, did you really think you'd slip that one by me??

                  What is lurking in the spare room just waiting for such a day 🀣🀣🀣😘
                  🀣🀣🀣 you don't get away with anything on here ! It sounds like a film... the spectre of the spare room ! 😱😱

                  We are going to have a go with it later. XxπŸ˜˜πŸ€—πŸ€—

                  Comment


                    Big girl pants time Deb πŸ€—πŸ€—πŸ˜˜
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

                    Comment


                      Ellie
                      Its Chiltern Invadex.I researched it but what a saga it was .Anyway it’s sorted now just in time !
                      The problem is with bio bidet toilet seats is that it’s hard to get a shower chair that fits over it without messing with the sensor.
                      Feeling a lot better now.
                      best wishes
                      Maryx

                      Comment


                        Mary C glad you're feeling better😘
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                        Comment


                          Deb good luckπŸ‘πŸ»πŸ˜‰πŸ˜˜
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                          Comment


                            πŸ’–πŸ’–My best friend & husband have been staying at their daughters while completing a new flat purchase, I've missed her....she's moved in this weekend ...happy days now she's only 10 minutes awayπŸ’–πŸ’–

                            She'll come with me to respiratory appointment tomorrowπŸ‘πŸ»
                            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                            Comment


                              Mary C Thanks for that Mary, looks like a nice chair. xx
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

                              Comment


                                Originally posted by LindaB View Post
                                happy days now she's only 10 minutes away
                                Brilliant news Linda πŸ‘πŸ‘

                                Hope your appointment goes well tomorrow 😘
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

                                Comment

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