πA good day with so many lovely gifts. Family popping in throughout the day and granddaughter and partner staying over. I've just got into bed...tired but happy. Hoping everyone found some small joyπ
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
Glad that youβve had a good Christmas with loved ones Linda xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Yes a nice time. Nice food and good company. Xxxwhen i can think of something profound i will update this.Comment
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π reasons to be cheerful
Christmas turned out ok ...in spite of covid and MND. The Christmas tree went up....which I wasn't sure of.
I had so many lovely gifts and visitors. Had some good food including Christmas dinner courtesy of my best friend.
New Years Eve was spent with my bestie....we had a G&T watch Jules Holland and laughed and chatted. Even with my newly acquired limited voice. It was ok...we toasted in 2022.
I'm listening to the Vienna Concert bbc2 as I write this....love it and it's my annual treat.
No idea what 2022 will bring and the challenges I will undoubtedly face....however I'm thankful for this forum and my MND family.
At diagnosis when my world turned upside down....I thought well go home and wait for the grim reaper but all of you made me realise there is still a life to live....not an easy life....however your stories of overcoming obstacles, sometimes many years after diagnosis, gave me hope. π
So to all of you...thank you. π
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βββInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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LindaB sounds like youβve had a fabulous time xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Linda so glad you have had that nice Christmas. And I am thankful too for the lovely people on here, thank you all, and all the best to everyone for the new year xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Ellie the feeling is mutual I assure you.....we may have met before....in another lifeπ―πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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And I love both of you. β€οΈπππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Awwwww matthew55 that's lovely....you're such a huge part of this forum.
In real life I fear I'd irritate you as I couldn't resist 'social working you' just a bitπππππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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I'd love the challenge and the chance! ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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OK Matthew what about me?! Where do I fit in and the rest of the lovely ladies?!!! π€·ββοΈwhen i can think of something profound i will update this.Comment
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Of course you too. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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πJanuary & February can feel like particularly gloomy months for many of us...even pre MND. So harder to find reasons to be cheerful....without someone wanting to punch meπ³
Anyhoo bestie called in today...we caught up on family gossip....also talked about a possible holiday....later in the year....it may or may not happen but it felt good to plan. I know it gave her a boost too...I can't overlook how sad she feels about my diagnosis. Normality for her is everything....so holiday chat cheered us both up in different ways. πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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LindaB thatβs nice of your βbestieβ xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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