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Reason to be cheerful πŸ’“πŸ’

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    #31
    Mary I love lemon drizzle cake too....( Any cake to be honest). Simple things are the best because it's a sense of normality...enjoy your visitors & afternoon tea. It's very rainy here but fingers crossed it holds off for you β˜•πŸ°πŸŒ₯πŸ’‹
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #32
      Mary C Mmmm, lemon drizzle cake!! (I'm now drooling a la Homer Simpson at all this talk of cake 😍)

      Enjoy your day Mary. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #33
        LindaB I do crosswords, those type of words come up from time to time. Use it or lose it, eh πŸ˜‚πŸ˜˜
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #34
          Well done for your cake Linda... it sounds delicious... as does your lemon drizzle cake Mary.

          As we're amongst close friends I'll confess to never having made a cake πŸŽ‚ and im not sure now is the time to start a baking career. I used to make chocolate crispies with the children but I'm not sure that counts ! 🀣

          Enjoy your day,
          Love Debbie x

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            #35
            I have found the woman in my dreams a cake eater who smells like a goat! πŸ˜πŸ˜πŸ’—πŸ˜˜XX
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #36
              Originally posted by Deb View Post
              I used to make chocolate crispies with the children but I'm not sure that counts !
              Of course it does πŸ‘πŸ‘πŸ˜‚πŸ˜˜

              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                #37
                My reason? Tottenham unbeatable in 180 minutes and beating the old enemy 1 - 0 at home. Happy Days COYS!!!! πŸ‘πŸ‘πŸ˜„πŸ˜„πŸ˜„xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #38
                  And I spent a few hours in the 🌞🌞 today, catching up with some friends 😎 Unfortunately no 🍰 for me, nor even a chocolate crispie cake πŸ˜‚πŸ˜ but that's OK. xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #39
                    Glad for any of us enjoying Sunday and that you've been able to sit in the sun Ellie. Its raining and windy here but I've had a fab time seeing our gorgeous grandson ❀ 😍

                    Maybe one day I'll share my secret chocolate crispy recipe with him 🀣

                    Love Debbie x

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                      #40
                      Ellie I've sent you virtual black Caribbean Rum cake for you to virtually eat ...

                      Glad you had a few hours in the sun with friends....extra vitamin D πŸ€—πŸ’‹πŸ˜˜
                      ​​​​​​
                      Last edited by LindaB; 8 August 2021, 19:17.
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                        #41
                        LindaB Just had a teaser taste, yum yum, nice and moist. My barista is brewing my coffee right now, so I'll be busy for half a hour, thank you!! 😘😘
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        ​

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                          #42
                          Todays reason to be cheerful- I've got tomorrow off (catch up on the BITSC)- & so a long bank holiday weekend! Also between you and I Saturday is my birthday- there will be cake(s) family round and we'll sit in my summer house for afternoon tea. πŸ₯³πŸ°β˜•
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                            #43
                            Happy birthday to you LindaB for Saturday.
                            What a lovely sunny day here in Warwickshire.Went for a riverside wheelchair push In Worcester this afternoon.Hubby had lunch but I didn’t fancy anything so supplement through RIG for me.( Will contact nutritionist tomorrow as appetite is deteriorating)

                            It was a good people watching spot outside at the riverside restuarant.

                            It took my mind off my deteriorating voice and change in breathing.Mobility down to transfers mainly.Quite a lot of deterioration since end of June.Counting my blessings each day but realistic .

                            Home now and sister in law ready to wash and blow dry my hair..got to look presentable as friends coming tomorrow afternoon.
                            Plan to have glass of wine later while I can enjoy it.Another good day and reason to be cheerful.
                            Best wishes
                            Mary



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                              #44
                              Originally posted by LindaB View Post
                              ... and we'll sit in my summer house for afternoon tea.
                              Does your pond have a Duck House too? πŸ˜‚πŸ˜‚πŸ˜‚

                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

                              Comment


                                #45
                                LindaB Your weekend plans sound wonderful, enjoy. 😘
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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