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    Not quite
    Ellie
    Forum Member
    Ellie πŸ˜‚
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      Is it Dumbo ? My children loved that film. X😘🐘

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        I hope it's not Nellie the Elephant as that's the tune that played as I carried my daughters tiny coffin out of the church to. 😒xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          Oh Matthew. Our little girl, who we lost, loved singing Nellie the elephant.

          Maybe our girls are singing in it together somewhere. ❀❀ xx

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            I hope to hear them sing when I go. πŸ˜‰πŸ˜πŸ˜˜πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              Me too ! πŸ˜˜β€πŸ˜πŸ€—xx

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                Originally posted by Deb View Post
                Is it Dumbo ? My children loved that film. X😘🐘
                That's it Dumbo πŸ˜πŸ‘πŸ»πŸ˜‰πŸ†βœ…
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                  matthew55
                  Forum Member
                  matthew55 &

                  Deb
                  Forum Member
                  Deb my heart goes out to you both....such loss. πŸ’”
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                    Originally posted by LindaB View Post
                    matthew55
                    Forum Member
                    matthew55 &

                    Deb
                    Forum Member
                    Deb my heart goes out to you both....such loss. πŸ’”
                    Thank you
                    LindaB
                    Forum Member
                    LindaB xxβ€πŸ€—πŸ˜˜

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                      Yes what a terrible loss, you two. Love to you both xx
                      Diagnosed July 2020, ALS bulbar onset.

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                        Over 30 years ago now but you never forget. The pain goes but the love is eternal. πŸ’”πŸ˜£πŸ˜πŸ˜xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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