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Bupa

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    Bupa

    I went for the first session of drug trial this morning.
    Nurse assigned to me
    Every dept I had to go to there was no waiting
    while waiting for my lift home the nurse gave me a latte.
    the woman behind I heard say "why don't we get free coffee". The chap with her said "must be BUPA"
    I had to smile.
    It's all funny

    #2
    Nice one Ken!

    Hope you tolerate the TUDCA meds, if that's what you got. 🤞🤞 😘
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      The doctor told me that after the trial we would automatically get the drug if it proved useful.
      It's all funny

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        #4
        Originally posted by Ellie View Post
        Nice one Ken!

        Hope you tolerate the TUDCA meds, if that's what you got. 🤞🤞 😘
        Never been treated so well. I was treated like royalty.
        It's all funny

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          #5
          That’s great Ken x
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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