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    Random memories

    As a lad I had a bicycle that I went everywhere on. It was an old Raleigh wayfarer with no gears. I sprayed it dayglow green and put wide handlebars on. I named her Glimfeather. She was fast and in races through Bushy Park from Teddington to Hampton Court I could beat any racer bike. One of our favourites things was to to ride to Oxshott woods, a round trip of about 20 miles, and scramble round. Sometimes doing jumps over 50 feet. One time a mate borrowed it and in a bad jump buckled my front wheel. I walked home! The things we could do when we were young. πŸš²πŸ˜‰πŸ˜πŸ€•xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Smashing memories Mathew. Reminds me of my oldest boy (born 1973). I can remember a couple of things from when I was 2 and 3. But more from aged 4 onwards, x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      #3
      I shared a bike with my brother until I got my cherished Raleigh Chipper aged 6 πŸ’šπŸš²πŸ’š Hoardes of us used to go off on our bikes for hours, well, hoardes might be an exaggeration, maybe 5 or 6 of us 😏😘😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Never had a new bike but my brother's hand me downs. I remember long long bike rides when we had no sense of time or distance....and weary journeys back. Always had our dog with us...a lab cross called shandy..she came everywhere we did. Sandwiches that we all swapped. Halcyon days in North Wales.
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Originally posted by LindaB View Post
          Never had a new bike but my brother's hand me downs. I remember long long bike rides when we had no sense of time or distance....and weary journeys back. Always had our dog with us...a lab cross called shandy..she came everywhere we did. Sandwiches that we all swapped. Halcyon days in North Wales.
          What about the ginger beer George? 😍😍
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            No ginger beer - although my mum made her own for every family party - extra fiery πŸ˜‰πŸ˜˜
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              #7
              When my mum died she left me a bit of money. To honour her and visit somewhere she always wanted to go I took wife number two for two weeks on the Maldives. Our room was a hut on the beach and no shoes was a rule. I was working as a warehouse manager for Sainsbury and my feet were a mess. Two weeks of sand and sea water completely cured my feet and they've been fine ever since. I like to think it was my mums last present to me. πŸŽπŸ™πŸ˜πŸ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                matthew55 great memory and your mum sounds like a lovely lady xx
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

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                  #9
                  To think that a year (or two?) ago I was still riding a borrowed ebike into the countryside, gradually using more and more e until mnd got the better of me. Really miss it. x
                  Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                    #10
                    I recall being on a friend's bike. Only went round the corner to his house and I was just about to go onto the cycle track. Those posts they use to stop cars entering the cycle track I rode straight into one and fell on the floor. I took it back and told him I thought it was too dangerous.
                    years later me and my best mate and 4 kids cycling next to the Bristol channel. It rained so hard we had to stop. I couldn't even see my handle bars. We were soaked to the skin but the kids loved it.
                    I loved my bike. Big blue one with a basket on the front. One year I went on holiday with my mum and when I returned my husband had taken it to the tip. There was nothing wrong with it. I had bought it with birthday money from my dad. His last to me before he died. I had a lot to say to him about that. 🀨
                    when i can think of something profound i will update this.

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                      #11
                      Memories. When my two children were young we went to a play area whilst on holiday. My husband said go on the roundabout and I'll push you. I did and he pushed me so fast I was holding on for dear life with my bottom an inch from the ground. He pushed me faster and faster and I couldn't speak to say stop. I thought this isn't funny so all I could do was hold on and hope for the best. I was not amused !!!

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                        #12
                        That sounds terrible. You poor thing. 😳
                        when i can think of something profound i will update this.

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                          #13
                          denise honestly it was bad haha I can laugh about it now. I still being it up in convo over 13 years later

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