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    Everything crossed

    If I could have one wish today it would be that we have a busy day on this forum. πŸπŸ˜‰πŸ˜πŸ‘Œxx

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    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Busy in what way?
    matthew55
    Forum Member
    matthew55 πŸ€”
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #3
      People making posts
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        well I'm here πŸ‘πŸ»πŸ˜‰
        LindaB
        Forum Member
        Last edited by LindaB; 2 December 2021, 15:06.
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Originally posted by matthew55 View Post
          If I could have one wish today it would be that we have a busy day on this forum. ​​​​
          ​​​
          My wish is that this forum didn't need to exist 😏😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            Imagine that day...a cure and we all agree to form a face book group instead πŸ™πŸ€”πŸ€“
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              #7
              Linda C21
              Forum Member
              Linda C21 We'll be living it up in the Turks & Caicos πŸ›£πŸπŸ–πŸ§‰πŸ§‰πŸΎπŸΈπŸΉπŸ»πŸ₯‚βœ¨πŸ§¨πŸŽˆπŸ’ƒπŸ•Ί no need for a FB group. xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                #8
                Count me in Ellie / Linda xx

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                  #9
                  Originally posted by matthew55 View Post
                  If I could have one wish today it would be that we have a busy day on this forum. πŸπŸ˜‰πŸ˜πŸ‘Œxx

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                  I'm here! I've been a bit quiet because I've been sorting a care home for my mum ( not MND related care !) She's understandably very reluctant and its hard due to covid restrictions and my travel restrictions. We've lots of family support and we think we've got it....even if she's planning her escape !

                  The Turks and Caicos trip sounds fab ! πŸ₯‚πŸΎπŸΉπŸ˜ŽπŸŒžbut I'd settle for meeting everyone down the local 🍺 Lots of love to everyone ❀ xxπŸ˜˜πŸ€—

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                    #10
                    'We'll be living it up in the Turks & Caicos πŸ›£πŸπŸ–πŸ§‰πŸ§‰πŸΎπŸΈπŸΉπŸ»πŸ₯‚βœ¨πŸ§¨πŸŽˆπŸ’ƒπŸ•Ί no need for a FB group. xx'

                    I'm up for that....it will be party party party & down the local tooπŸ™πŸ™πŸ’–
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                      #11
                      Deb
                      Forum Member
                      Deb
                      Hi Deb, hope you find a decent care home that your mom will settle into .It must be hard for her to accept and you family.
                      Best wishes
                      Mary.x

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                        #12
                        Thank you
                        Mary C
                        Forum Member
                        Mary C . We are very lucky that a close relative works in a care home and says it's excellent. It seems lovely so just hoping mum will settle.

                        So upsetting I can't help with her care but I will see her more as it has level access so thats a bonus! XxπŸ˜˜πŸ€—

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                          #13
                          Deb
                          Forum Member
                          Deb hope it goes well for your mum...good to have someone 'in the know' who says it's excellent. I bet she loves it once settled in. πŸ€—πŸ˜˜
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                            #14
                            Thank you
                            LindaB
                            Forum Member
                            LindaB xxπŸ€—πŸ˜˜

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