If I could have one wish today it would be that we have a busy day on this forum. ππππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Busy in what way? matthew55 π€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
People making postsBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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well I'm here ππ»πLast edited by LindaB; 2 December 2021, 14:06.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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My wish is that this forum didn't need to exist ππOriginally posted by matthew55 View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Imagine that day...a cure and we all agree to form a face book group instead ππ€π€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Linda C21 We'll be living it up in the Turks & Caicos π£πππ§π§πΎπΈπΉπ»π₯β¨π§¨πππΊ no need for a FB group. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Count me in Ellie / Linda xxComment
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I'm here! I've been a bit quiet because I've been sorting a care home for my mum ( not MND related care !) She's understandably very reluctant and its hard due to covid restrictions and my travel restrictions. We've lots of family support and we think we've got it....even if she's planning her escape !Originally posted by matthew55 View Post
The Turks and Caicos trip sounds fab ! π₯πΎπΉππbut I'd settle for meeting everyone down the local πΊ Lots of love to everyone β€ xxππ€Comment
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'We'll be living it up in the Turks & Caicos π£πππ§π§πΎπΈπΉπ»π₯β¨π§¨πππΊ no need for a FB group. xx'
I'm up for that....it will be party party party & down the local tooπππ
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Deb
Hi Deb, hope you find a decent care home that your mom will settle into .It must be hard for her to accept and you family.
Best wishes
Mary.xComment
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Thank you Mary C . We are very lucky that a close relative works in a care home and says it's excellent. It seems lovely so just hoping mum will settle.
So upsetting I can't help with her care but I will see her more as it has level access so thats a bonus! Xxππ€Comment
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Deb hope it goes well for your mum...good to have someone 'in the know' who says it's excellent. I bet she loves it once settled in. π€πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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