Maybe it's the time of year but my MND doesn't take a holiday, I don't stop producing saliva or phlegm and my pain doesn't disappear for a few days. Just saying. π€¬π€π€πxx
-
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
We'll put Matt
-
Are you short of meds - hopefully not, especially pain meds xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
-
I don't think so. Got a start date for new carers of 10th January. πππππππππππππππππππππππππππππππππππππππππππππππππx x
ββββββBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
-
I've everything crossed for that it works out as promised πππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
-
The manager, who I met, used to be a nurse, so I have every confidence. Well they can't be worse than my current lot. Their staff wouldn't get jobs as packers at a supermarket. ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
Comment