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    Public Holidays

    Maybe it's the time of year but my MND doesn't take a holiday, I don't stop producing saliva or phlegm and my pain doesn't disappear for a few days. Just saying. πŸ€¬πŸ€’πŸ€•πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    We'll put Matt

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      #3
      Are you short of meds - hopefully not, especially pain meds xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        I don't think so. Got a start date for new carers of 10th January. 😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁x x
        ​​​​​​
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          I've everything crossed for that it works out as promised πŸ’‹πŸ’‹πŸ’‹
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            The manager, who I met, used to be a nurse, so I have every confidence. Well they can't be worse than my current lot. Their staff wouldn't get jobs as packers at a supermarket. πŸ›’πŸ˜‰πŸ˜πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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