From the depths I am going to rise like a phoenix. Felt like saying it as I feel it at this exact moment and I need you guys right now just to chat exchange and laugh. hope I can do the same for you
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Well my 1st thought was Boris Johnson #ducks for cover πOriginally posted by Ellie View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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πππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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I got todays really quickly for some reason π€£ Boris probably has one he just has no control over it ! Xx # duck even further for coverOriginally posted by Ellie View PostComment
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How many guesses?Originally posted by Deb View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Got there
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π©π©π©π©π©Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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Bit of a struggle today π
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π©π©π©π©π©Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Took a whileπ€
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Wordle 217 4/6
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π©π©π©π©π©Diagnosed 3rd November 2021 Bulbar OnsetComment
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Three again π
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π©π©π©π©π©RichardComment
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Three is a good score richard ππ»Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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I'm just getting into this. I'm getting there.when i can think of something profound i will update this.Comment
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denise π£Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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