Originally posted by GillB
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So annoying isnβt it πDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily. -
Gill, you lovely lady, you get credit that the word was your 4th try and wasn't the first option to spring to mind ππOriginally posted by GillB View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Yay! A three for me today.
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π©π©π©π©π©Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive πΊ.Comment
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I had the same problem as others today πFoxes Never Quit πComment
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3 for me
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π©π©π©π©π©Carer for my husband who was diagnosed with ALS on 15.12.21.
Trying to think of only today and tomorrow
Alison β₯Comment
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Pedestrian 4 for me today
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π©π©π©π©π©Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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A three for me today.
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π©π©π©π©π©Diagnosed 3rd November 2021 Bulbar OnsetComment
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Not very impressive
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π©π©π©π©π©Last edited by PeterPan; 3 March 2022, 07:15.Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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And a 3 for me this morning
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π©π©π©π©π©RichardComment
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Crikey took me a whileβπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Self praise is no praise but... I'm quite pleased with that π
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π©π©π©π©π©βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie smashed itππ»πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Smashed it today πππFoxes Never Quit πComment
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At least I pretended to have some humility... πππOriginally posted by Lcfcno1fan View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive πΊ.Comment
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