We have somehow got through Christmas and dreading the ‘Happy New Year’. A New Year and we have no idea of what’s ahead for my lovely husband. All I know is it’s not a happy one but will put big girl pants on and try to stay as positive as I can for him. I would like to wish you all a very peaceful New Year and thank you for the kind support you all offer. It does feel like we have joined a rather loving family. Thank you xx
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Must admit I will probably be saying "Happy New Year" through gritted teeth tonight, but I am counting the fact that I am still in one piece to see another year in as a win.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
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Doggymama Thank you 💖
I'm the equivalent of The Grinch when it comes to New Year 😏 I don't know if it's saying goodbye to the old year or looking into my crystal ball to see what the new year might have in store for me, all I know is that NYE is my least favourite day of the year...
But, sure as eggs are eggs, the sun will rise tomorrow 👍👍 😘😘Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I've always found New Years Eve a little sad...but usually go with the flow and partied in one way or another.
This year I'll be home....best friend staying over....so will raise a glass and see in 2022....Jules Holland in the background 🍾🕛🎉🎉🎈
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
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im with you matthew. ive always felt the same and could never figure out why eveyone would think it would be better, it was just a different number on the calender, it never was just the same old ****. we have each other and that is the main thing. a lot of people dont have that. i will probably go to bed early tonight like i usually do and with any luck the sun will come up like usual. one day at a time its certainly easier that way and we can all do that together.
together we are stronger just remember that.
xxxxxxxxxxxwhen i can think of something profound i will update this.
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I've never been keen on New years Eve either..along with lots of other people, I suspect. I never liked being forced to stay up late and then feeling obliged to kiss everyone !
As soon as we had children it was an excuse to order in lovely food and have an early night. It's a film and early to bed tonight and then take one day at a time !
Love, hugs and best wishes to all our wonderful forum family xxx😘🤗🥰
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We are doing the one day at a time.
But I always feel I little more positive at the new year.
One in the eye to the consultant who gave hubs the standard 6 months
17 months in now.
But tinged with sadness, as will this be our last year together.
So back to one day at a time.
All the best to everyone. Chat again in 2022.
Not seen the sun in ages but daylight still sort of appears around 10amDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.
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