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    New Year

    We have somehow got through Christmas and dreading the ‘Happy New Year’. A New Year and we have no idea of what’s ahead for my lovely husband. All I know is it’s not a happy one but will put big girl pants on and try to stay as positive as I can for him. I would like to wish you all a very peaceful New Year and thank you for the kind support you all offer. It does feel like we have joined a rather loving family. Thank you xx

    #2
    Thanks and a happy new year to you both, well as happy as it can be I mean xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    Comment


      #3
      Must admit I will probably be saying "Happy New Year" through gritted teeth tonight, but I am counting the fact that I am still in one piece to see another year in as a win.
      Hi, I'm Eddie.
      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
      Still walking and talking, and wondering what the future will bring.

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        #4
        With the one day at a time rule the New Year is a no no for us sadly. 😢😁🤗👍xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #5
          Doggymama
          Forum Member
          Doggymama Thank you 💖

          I'm the equivalent of The Grinch when it comes to New Year 😏 I don't know if it's saying goodbye to the old year or looking into my crystal ball to see what the new year might have in store for me, all I know is that NYE is my least favourite day of the year...

          But, sure as eggs are eggs, the sun will rise tomorrow 👍👍 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          Comment


            #6
            I've always found New Years Eve a little sad...but usually go with the flow and partied in one way or another.
            This year I'll be home....best friend staying over....so will raise a glass and see in 2022....Jules Holland in the background 🍾🕛🎉🎉🎈

            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              #7
              I've never understood the rabid conviction that the next year will be better than the last one simply by virtue of being new. 😉😁😘😍xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                #8
                im with you matthew. ive always felt the same and could never figure out why eveyone would think it would be better, it was just a different number on the calender, it never was just the same old ****. we have each other and that is the main thing. a lot of people dont have that. i will probably go to bed early tonight like i usually do and with any luck the sun will come up like usual. one day at a time its certainly easier that way and we can all do that together.

                together we are stronger just remember that.
                xxxxxxxxxxx
                when i can think of something profound i will update this.

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                  #9
                  I've never been keen on New years Eve either..along with lots of other people, I suspect. I never liked being forced to stay up late and then feeling obliged to kiss everyone !

                  As soon as we had children it was an excuse to order in lovely food and have an early night. It's a film and early to bed tonight and then take one day at a time !

                  Love, hugs and best wishes to all our wonderful forum family xxx😘🤗🥰

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                    #10
                    Originally posted by Ellie View Post
                    But, sure as eggs are eggs, the sun will rise tomorrow 👍👍 😘😘
                    Where are you in the world that you can be so certain the sun will rise tomorrow? Haven’t seen the big yellow ball for weeks❤️
                    Richard

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                      #11
                      We are doing the one day at a time.

                      But I always feel I little more positive at the new year.

                      One in the eye to the consultant who gave hubs the standard 6 months

                      17 months in now.

                      But tinged with sadness, as will this be our last year together.

                      So back to one day at a time.

                      All the best to everyone. Chat again in 2022.

                      Not seen the sun in ages but daylight still sort of appears around 10am

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                        #12
                        Originally posted by richard View Post
                        Haven’t seen the big yellow ball for weeks
                        richard
                        Forum Member
                        richard That's what you get for being a lazy bones, lolling in bed, concentrating so much on the Wordle that you miss the sunrise 😉😘

                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                          #13
                          Ellie
                          Forum Member
                          Ellie I bet you've secretly completed a wordle....😄😘😘
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                          Comment


                            #14
                            LindaB
                            Forum Member
                            LindaB 🤐🤭😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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