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    #16
    Ah - I haven't seen a letter about Covid and Riluzole either.
    Too late anyway - I had Covid over Christmas and took my Riluzole all the way through with no problems.
    I did get the letter about special antiviral treatment if I got Covid, but after my positive PCR test they phoned me up to offer that on Christmas morning, and I didn't fancy spending Christmas day on a drip, so I declined.
    Hi, I'm Eddie.
    Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
    Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
    Still wondering what the future will bring.
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      #17
      I think its rather odd especially as covid has been around for a while and funny that no one else has got the letter. It's from Devon/Cornwall mnd. Cant believe its specific to here. Stephen doesn't even take riluzol. The plot thickens!!
      when i can think of something profound i will update this.
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