Covid

[denise]

I think its rather odd especially as covid has been around for a while and funny that no one else has got the letter. It's from Devon/Cornwall mnd. Cant believe its specific to here. Stephen doesn't even take riluzol. The plot thickens!!

[WheelsOfSteel]

Ah - I haven't seen a letter about Covid and Riluzole either.
Too late anyway - I had Covid over Christmas and took my Riluzole all the way through with no problems.
I did get the letter about special antiviral treatment if I got Covid, but after my positive PCR test they phoned me up to offer that on Christmas morning, and I didn't fancy spending Christmas day on a drip, so I declined.

[denise]

We had that as well or rather Stephen did. I thought wonderful what about me!

[LindaB]

I've had no letter about covid and Riluzole..did have a letter from the NHS about specific treatment if infected and a home test kit.

[denise]

You are welcome
just hope everyone reads this.

[Patw]

I have Covid for ten days now it’s been brutal, at no point any of my team of helpers mentioned this , will stop now thanks 🙏

[denise]

No, nothing.

It's from
mnd southwest peninsula network,
dept of neurology ,
derriford hospital, Plymouth.

I'm presuming everyone should be getting this letter.

[Rosemary6NT]

Letter concerning covid and riluzole.

Patients taking riluzole . If you test positive for covid you should stop taking riluzole for a short period. You will need to take advice from your GP or neurologist as to whether you can resume taking riluzole once you have received a negative covid test from a lateral flow or PCR test. A blood test is also recommended following a period of isolation due to covid.

This is from mnd care coordinator

Is there any indication of why Riluzole should be stopped?

[denise]

I thought just incase I'd tell everyone. Xx

[Lynne K]

Letter concerning covid and riluzole.

Patients taking riluzole . If you test positive for covid you should stop taking riluzole for a short period. You will need to take advice from your GP or neurologist as to whether you can resume taking riluzole once you have received a negative covid test from a lateral flow or PCR test. A blood test is also recommended following a period of isolation due to covid.

This is from mnd care coordinator

I didn’t know that but luckily I haven’t got Covid xx

[Lynne K]

Boris was a fool before Covoid so he is a fool after

Exactly xx

[denise]

Letter concerning covid and riluzole.

Patients taking riluzole . If you test positive for covid you should stop taking riluzole for a short period. You will need to take advice from your GP or neurologist as to whether you can resume taking riluzole once you have received a negative covid test from a lateral flow or PCR test. A blood test is also recommended following a period of isolation due to covid.

This is from mnd care coordinator

[LindaB]

Boris was a fool before Covoid so he is a fool after

100%👍🏻

[matthew55]

Boris was a fool before Covoid so he is a fool after

[Lynne K]

LindaB too true Linda xx