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🍿🌭🎥🎬Virtual Cinema 🎬🎥🌭🍿

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    🍿🌭🎥🎬Virtual Cinema 🎬🎥🌭🍿

    Wondered if anyone would be interested in watching a film virtually together?

    If so what would be your film choice?

    Would you prefer a matinee or evening viewing?

    What's a good day?

    ​​​​​​Bring your own snacks and drinks 🍿🌭🎥🎬no masks required😉😘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

    #2
    Matinée for me please 🥤🍬🍫🍿xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      🤔 I know this isn't exactly what you had in mind but it might work better if we had a short window of time in which to attend the cinema, 24-48hrs maybe?

      Perhaps choose a film and suggest a time and, if people can attend, great, if not, we could choose another showing.

      What do you all think? xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      Comment


        #4
        Ellie I'm a social worker I can't possibly make all those decisions 😂😂😂😂😋
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

        Comment


          #5
          Ellie

          Great idea.

          A little like a book club.

          I am in if there is a watching window
          Donna

          Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

          Comment


            #6
            I can't take any credit for the Cinema Club - LindaB is the forum's Event Manager 😉👍😘
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            Comment


              #7
              If anyone is having takeaway I'm not coming or loud sweetie wrappers. But anytime is good for me. Anyone coming round with ice cream?
              when i can think of something profound i will update this.

              Comment


                #8
                I’m apprehensive. We usually get two people in front of us who constantly make comments throughout and someone behind who sniffs for two hours. ☹️
                Richard

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                  #9
                  richard I normally get the tallest person in Britain who chooses - out of all the empty seats- to sit in front of me. Not only that he never sits still...😉😬
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                  Comment


                    #10
                    denise there will be virtual ice cream 🍨🍦😘
                    Last edited by LindaB; 24 February 2022, 09:33.
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                    Comment


                      #11
                      Count me in. I can probably manage any time, but matinees would help occupy the afternoons.
                      How would we work this? Something like agree on a streamed Netflix movie, and all hit "Play" at the same time?
                      I will get the hang of streaming eventually, but I struggle enough with the hundreds of channels on conventional TV
                      Hi, I'm Eddie.
                      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                      Still walking and talking, and wondering what the future will bring.

                      Comment


                        #12
                        WheelsOfSteel yes I think agree a movie on Netflix or one of the catch up channels and agree a time to hit play.

                        Could be a ' 'classic' or something modern....🤔
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                        Comment


                          #13
                          I reckon we will discover all sorts of things about each other with our film choices
                          Hi, I'm Eddie.
                          Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                          Still walking and talking, and wondering what the future will bring.

                          Comment


                            #14
                            Originally posted by richard View Post
                            We usually get two people in front of us who constantly make comments throughout and someone behind who sniffs for two hours.
                            You're in luck Richard - myself and Matthew are in the seats beside you, neither of us can utter a word nor sniff 😉😂😂😂😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              I keep sneezing so I will sit in the back seats.

                              I just watched The Courier which was all about Russia, Cuba and the threat of war. Seems very apt at the moment. It was really good Benedict Cumberbatch had the lead.

                              🤔
                              when i can think of something profound i will update this.

                              Comment

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