🍿🌭🎥🎬Virtual Cinema 🎬🎥🌭🍿

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  • LindaB
    Forum Member
    • Jun 2021
    • 2710

    🍿🌭🎥🎬Virtual Cinema 🎬🎥🌭🍿

    Wondered if anyone would be interested in watching a film virtually together?

    If so what would be your film choice?

    Would you prefer a matinee or evening viewing?

    What's a good day?

    ​​​​​​Bring your own snacks and drinks 🍿🌭🎥🎬no masks required😉😘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
  • matthew55
    Forum Member
    • May 2020
    • 5794

    #2
    Matinée for me please 🥤🍬🍫🍿xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    Comment

    • Ellie
      Forum Member
      • Oct 2012
      • 12482

      #3
      🤔 I know this isn't exactly what you had in mind but it might work better if we had a short window of time in which to attend the cinema, 24-48hrs maybe?

      Perhaps choose a film and suggest a time and, if people can attend, great, if not, we could choose another showing.

      What do you all think? xx
      ​Diagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .

      Comment

      • LindaB
        Forum Member
        • Jun 2021
        • 2710

        #4
        Ellie I'm a social worker I can't possibly make all those decisions 😂😂😂😂😋
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

        Comment

        • DeeH
          Forum Member
          • Jul 2020
          • 340

          #5
          Ellie

          Great idea.

          A little like a book club.

          I am in if there is a watching window
          Donna

          Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

          Comment

          • Ellie
            Forum Member
            • Oct 2012
            • 12482

            #6
            I can't take any credit for the Cinema Club - LindaB is the forum's Event Manager 😉👍😘
            ​Diagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
            .

            Comment

            • denise
              Forum Member
              • Jun 2020
              • 6688

              #7
              If anyone is having takeaway I'm not coming or loud sweetie wrappers. But anytime is good for me. Anyone coming round with ice cream?
              when i can think of something profound i will update this.

              Comment

              • richard
                Forum Member
                • Aug 2020
                • 768

                #8
                I’m apprehensive. We usually get two people in front of us who constantly make comments throughout and someone behind who sniffs for two hours. ☹️
                Richard

                Comment

                • LindaB
                  Forum Member
                  • Jun 2021
                  • 2710

                  #9
                  richard I normally get the tallest person in Britain who chooses - out of all the empty seats- to sit in front of me. Not only that he never sits still...😉😬
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                  Comment

                  • LindaB
                    Forum Member
                    • Jun 2021
                    • 2710

                    #10
                    denise there will be virtual ice cream 🍨🍦😘
                    Last edited by LindaB; 24 February 2022, 09:33.
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                    Comment

                    • WheelsOfSteel
                      Forum Member
                      • Nov 2021
                      • 840

                      #11
                      Count me in. I can probably manage any time, but matinees would help occupy the afternoons.
                      How would we work this? Something like agree on a streamed Netflix movie, and all hit "Play" at the same time?
                      I will get the hang of streaming eventually, but I struggle enough with the hundreds of channels on conventional TV
                      Hi, I'm Eddie.
                      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                      Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                      Still wondering what the future will bring.

                      Comment

                      • LindaB
                        Forum Member
                        • Jun 2021
                        • 2710

                        #12
                        WheelsOfSteel yes I think agree a movie on Netflix or one of the catch up channels and agree a time to hit play.

                        Could be a ' 'classic' or something modern....🤔
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                        Comment

                        • WheelsOfSteel
                          Forum Member
                          • Nov 2021
                          • 840

                          #13
                          I reckon we will discover all sorts of things about each other with our film choices
                          Hi, I'm Eddie.
                          Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                          Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                          Still wondering what the future will bring.

                          Comment

                          • Ellie
                            Forum Member
                            • Oct 2012
                            • 12482

                            #14
                            Originally posted by richard View Post
                            We usually get two people in front of us who constantly make comments throughout and someone behind who sniffs for two hours.
                            You're in luck Richard - myself and Matthew are in the seats beside you, neither of us can utter a word nor sniff 😉😂😂😂😘
                            ​Diagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                            .

                            Comment

                            • denise
                              Forum Member
                              • Jun 2020
                              • 6688

                              #15
                              I keep sneezing so I will sit in the back seats.

                              I just watched The Courier which was all about Russia, Cuba and the threat of war. Seems very apt at the moment. It was really good Benedict Cumberbatch had the lead.

                              🤔
                              when i can think of something profound i will update this.

                              Comment

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