Originally posted by matthew55
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Just for the 1st viewing. I wasn't sure how ppl would feel about weekends? We can see how it goes and tweak for next time?😉👍🏻Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified. -
Ok I will put it in my diary
1st March pancake day. just thought I'd share that 🤣when i can think of something profound i will update this.Comment
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😯2ND March....👍🏻😘Originally posted by denise View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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I know we could have pancakes and watch a movie ok a day late but why not? 🙂when i can think of something profound i will update this.Comment
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Pancakes or whatever you prefer😉😘Originally posted by denise View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Pancakes and icecream and its years since I had a chocolate flake. I'm a cheap date 🙂when i can think of something profound i will update this.Comment
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I'm usually free on a Wednesday afternoons but have something on 2nd March, so can't join you. Great film choice.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.Comment
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Was thinking that this thread can be used for anyone who wants to watch a movie virtually with someone. I know weekends can feel long for some so give it a go...🌭🍿👍🏻 just post a shout out😉Originally posted by matthew55 View Post
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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We could change the date...maybe the 3rd?Originally posted by Tabbycat View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Film I'm looking forward to seeing in the future 'Belfast' ...🌭🍿Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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LindaBDon't change it. I don't have Prime or Netflix (yet) but we have the film on DVD.We could change the date...maybe the 3rd
'We' have an extensive collection of DVD's, so extensive husband can't find it! (Probably because he has sooo many). So don't change the date, in case we never find it.
I will watch it later on the 2nd (if he finds it) and enjoy catching up on the comments.
I'll join next time.
Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.Comment
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Good idea xxOriginally posted by LindaB View PostDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Dammit - I was looking forward to this, but I now have a dentist appointment at 13:50.
I will probably watch the film later, but I do want to join you at these "virtual" viewings in the future.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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We could reschedule to tomorrow at 2pm???Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Please don't on my behalf. You folks have fun.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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