Announcement

Collapse
No announcement yet.

Description below comment line

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Description below comment line

    How do people get their little potted history below the post line? I don’t even know what it’s called
    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

    #2
    I’d like to know that too.
    Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes

    Comment


      #3
      Second attempt...
      At the very top right of these pages should be a button with your user name.
      Click on the button to get the drop-down menu, then click on "My Profile".
      In the User Profile screen, click on "Edit Settings".
      On the next screen, select the "ACCOUNT" tab.
      Scroll down to the "Conversation Detail Options" section, and click on "Edit Post Signature"
      Write something you want to say about yourself, and you can alter the fonts and colours.
      Anything you say in there should appear at the bottom of your posts.
      I look forward to reading them! Good luck.
      Last edited by WheelsOfSteel; 14 March 2022, 10:14.
      Hi, I'm Eddie.
      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
      Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
      Still wondering what the future will bring.

      Comment


        #4
        WheelsOfSteel thanks, I’ll give it a go. It won’t make riveting reading though 😂
        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

        Comment


          #5
          Rosemary6NT It might not be riveting reading, but you figured it out. 👏🏼👏🏼👏🏼
          Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

          Comment


            #6
            Good question Rosemary6NT I haven't been able to work that out!

            WheelsOfSteel thanks, I'll have a look when I log onto my laptop, can't find it on my phone!
            Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

            Comment


              #7
              Originally posted by WheelsOfSteel View Post
              Second attempt...
              At the very top right of these pages should be a button with your user name..
              Thanks Eddie!

              Doug
              Diagnosed April 2017

              Comment


                #8
                Thanks for asking.

                I managed it for a few months and then it disappeared.

                Here's hoping it works
                Donna

                Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

                Comment


                  #9
                  ok

                  back to drawing board
                  Donna
                  Donna

                  Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

                  Comment


                    #10
                    Testing signature again

                    Donna

                    Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

                    Comment


                      #11
                      Important note for first time signature users:

                      Once you have a saved signature and you make a post expecting to see the signature for the first time, it will not appear until the page is refreshed or you go back into it - don't panic and assumed you messed it up 😏😘
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      Comment


                        #12
                        I think I've done it. Using my laptop it was much easier to find.
                        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

                        Comment


                          #13
                          Originally posted by Tabbycat View Post
                          I think I've done it.
                          You certainly have 👍👍 😘
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          Comment


                            #14
                            Originally posted by Ellie View Post
                            Important note for first time signature users:

                            Once you have a saved signature and you make a post expecting to see the signature for the first time, it will not appear until the page is refreshed or you go back into it - don't panic and assumed you messed it up 😏😘
                            Thanks Ellie

                            I see that now.

                            I did have a signature a while back but it disappeared
                            Donna

                            Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

                            Comment

                            Working...
                            X