Yes happy hols to you both x
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Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning! -
Thank you everyone. Taxi here soon so from me it’s ‘Over and out for a while’. 😀RichardComment
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Question is will you still "wordle" now that you're addicted😄Originally posted by richard View Post
Have a wonderful time😎🍹🌞😘Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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IMG-20220320-WA0000.jpg So far, so good. They gave my own electric scooter to ride through the airport, and fast tracked everything, Yay! I am now up a mountain.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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WheelsOfSteel great stuff! Enjoy! xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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WheelsOfSteel great photo. Well done you!!! 👍🏻🌝Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Which country are you in?Comment
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WheelsOfSteel Fab pic Eddie - bonne vacances 😘😘Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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French Alps, resort called La TaniaOriginally posted by Aidan in Shrewsbury View PostHi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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Just spotted something. Zoom in on my picture above, and just past my shoulder you can see a girl.in a pink jacket in a wheelchair! Saw someone in one of those sit down ski Bob things they use in the Paralympics. Might see if I can have a go.
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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Great photo. Enjoy xComment
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Have a lovely time. Pretty sure you will without me telling you to.
😎 xxxwhen i can think of something profound i will update this.Comment
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Last day of this trip. Home tomorrow.You do not have permission to view this gallery.
This gallery has 1 photos.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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Lovely photo. I used to love skiing. Wasnt that good but just loved the snow and the mountains. Very therapeutic. ⛷when i can think of something profound i will update this.Comment
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