Announcement

Collapse
No announcement yet.

Socialising

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Socialising

    I actually went out out last night. After a few attempts meeting up with people that ended up me being tearful I actually did it last night.

    Make up and decent clothes lol. The hall easily accommodated my wheelchair and I dealt with my very poor speech.

    Our new wav made it possible.
    feeling fab for getting over my anxiety of people seeing my decline. X
    You do not have permission to view this gallery.
    This gallery has 1 photos.
    Diagnosed May 2021 bulbar onset als.

    #2
    Oh well done you. You look wonderful 😘
    when i can think of something profound i will update this.

    Comment


      #3
      You look great Shelly and I am really pleased that you had a fab time πŸ˜€πŸ˜€πŸ˜€πŸ˜€

      I used to be really self-conscious about going out ……..especially if eating was involved….. but now I really couldn’t give a monkeys 😊

      Take care,
      James x
      Foxes Never Quit πŸ’™

      Comment


        #4
        Fabulous news, glad you had a great time πŸ˜€
        Great photo. Getting a WAV is next on my to do list
        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

        Comment


          #5
          Looking good shelly21
          I managed a trip to the theatre this week
          20220421_193041.jpg
          Hi, I'm Eddie.
          Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
          Still walking and talking, and wondering what the future will bring.

          Comment


            #6
            shelly21

            You look lovely. So glad you were able to go out and overcame your anxiety. There will be no stopping you now x
            Diagnosed 3rd November 2021 Bulbar Onset

            Comment


              #7
              Thank you all. Its so hard getting over anxiety but I'm learning to not give a monkeys. I did eat small things so not that messy.

              The putting on make up left handed was funny especially my signature red πŸ’„. Took 5 attempts 🀣

              X
              Diagnosed May 2021 bulbar onset als.

              Comment


                #8
                shelly21 you look lovely and well done for getting over your anxiety. I am slowly getting over my anxiety about my loss of speech. I have realised how fortunate I am to still be mobile so I need to make the most of that while I can. So pleased you had a good time. x
                Bulbar onset diagnosed Nov 21. No speech but limbs ok so far.

                Comment


                  #9
                  Hope its so not easy. I actually don't mind the wheelchair use etc but speech well that's a biggie. I can't estimate when my speech will fully go but I don't think it will be long.

                  I'm limited now in my wheelchair going to friends and families houses re access etc but restaurants and pubs etc I can do.

                  X
                  Diagnosed May 2021 bulbar onset als.

                  Comment


                    #10
                    Great photo shelly21 looking glamπŸ’‹
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                    Comment


                      #11
                      Hi Shelley. Well done you. You look absolutely fab. Glad you had a good time.

                      Comment


                        #12
                        Well done to you shelly21 . You look gorgeous and I'm so glad you had a great time xxx

                        Comment


                          #13
                          shelly21 That colour of green really brings out your eyes πŸ‘€ Looking amazing!
                          It takes a lot of strength both physically and mentally/emotionally to socialize. Good on you!

                          Comment


                            #14
                            shelly21 Yo girl, you scrub up well - absolutely love the photo and that you went out πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘ I've had a bit of a day so far, and seeing your post has made me soooo happy, thanks for posting.

                            And, as I said before, the more you put yourself out there, the easier it gets for everyone.

                            Here's to more lippie outings 😘😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

                            Comment


                              #15
                              I've had a bit of a day so far, and seeing your post has made me soooo happy, thanks for posting.

                              Hope your day has got better Ellie and that things are as OK as they can be.

                              ​​​​​​​Hugs to you xxxπŸ˜˜πŸ€—


                              Comment

                              Working...
                              X