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    #1

    Spa day!!

    My amazing friend took me for a spa day yesterday. It was amazing and so relaxing. Totally wheelchair friendly and even had a hoist for the pool. The staff were amazing. I felt almost normal for a day, which given how frustrated and fed up I have been feeling was a blessing.

    I thoroughly recommend Centre Parcs Woburn Sands Aqua Sana if you are near enough. Carers go free too.

    Paying the price today. Cramps and twitches through the roof and so exhausted... but wow ๐Ÿ™‚
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    Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

    Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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    • Likes 11
    #2
    Looking good TinyLady Great friend you have ๐Ÿค—

    So, do tell... how much of that delicious looking food did you get through? ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜˜
    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
    โ€‹
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      #3
      Ellie - she is wonderful and works as a carer (sadly not mine) so really hands on with making it all feel easy and possible.

      I confess I didn't manage the food. I had a small piece of bread dipped in olive oil and decided not to push my luck. But I have a rubbish appetite so it didn't matter.
      Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

      Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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        #4
        Fantastic ๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€
        Foxes Never Quit ๐Ÿ’™
        • Likes 1

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          #5
          So glad you had a good day after all the struggles you have had recently ๐Ÿ˜˜
          Bulbar onset diagnosed Nov 21. No speech but limbs ok so far.
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            #6
            Ah thatโ€™s a lovely photo of you. Glad you had a lovely day. You so deserve it x
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              #7
              You so deserve it and isn't it nice to have a day feeling normal. What a lovely friend x
              Diagnosed 3rd November 2021 Bulbar Onset
              • Likes 1

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                #8
                Lovely photo. Sounds amazing place. Great chill out time after such a rubbish few weeks x
                Diagnosed May 2021 bulbar onset als.
                • Likes 1

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                  #9
                  The good days keep us going TinyLady . Glad you had a lovely time ๐Ÿ˜Š x
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                    #10
                    What a great photoโ€ฆ.thank you for sharing ๐Ÿ˜๐Ÿฅฐ
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹
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                      #11
                      Thank you everyone for your kind comments. I often get bogged down by the day to day struggles and fears, so it was really nice to have a day that felt so relaxed. Also good for other people to know very accessible and friendly places too xx
                      Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                      Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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                        #12
                        Thatโ€™s fantastic. We love Center Parcs and have visited Aqua Sana a few times. My wifeโ€™s eyes popped out of her head when she saw that carers go free! Glad you had a wonderful day.
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                          #13
                          Tony - that is why I thought it was worth sharing!! We need more opportunities to feel special xx
                          Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                          Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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                            #14
                            TinyLady Wow! Sounds amazing, great photo too. Good friends are worth their weight in gold ๐Ÿ˜
                            Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.
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                              #15
                              Tabbycat - we certainly find out who our friends are once things get tricky don't we? Mine are amazing and continue to make so much effort for me xx
                              Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                              Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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