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Thank you Ellie

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    Thank you Ellie

    Just to say I really don't know what we would do without Ellie round here. I've just read another of her well thought out, informed and insightful replies to another member and I'm full of admiration.
    So thank you Ellie you are really appreciated xxx

    #2
    Well said πŸ‘πŸ‘πŸ‘πŸ‘

    If only Ellie lived in Sussex she would be a national treasure 😁

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      #3
      Definitely agree! Thank you Ellie! You are always there to help and offer sound advice. This forum wouldn’t be the same without you.
      πŸ€—πŸ₯°πŸ˜Œ

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        #4
        Music man's wife That’s so kind of you, thank you from the bottom of my heart - I’m sitting here blushing 😳

        As I always say, I just share my experience and knowledge, not to receive any thanks, but to help and support others.

        That said, I very much appreciate your post πŸ€—πŸ˜˜


        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          πŸ‘ πŸ‘
          I have to agree, always insightful, measured and informative thank you. I have definitely benefited 😘
          Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

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            #6
            πŸ‘πŸ»πŸ‘πŸ» Totally agree. Thank you Ellie for all your help and advice. xx
            Bulbar onset diagnosed Nov 21. No speech but limbs ok so far.

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              #7
              Hear, hear πŸ‘πŸ‘πŸ‘πŸ‘

              She is a fountain of knowledge and has studied very hard over the years to educate herself about MND. We are very lucky to have such an informed person as part of our group. I have learnt such a lot from her since being here…… even if she does give me stick all the time 🀣🀣🀣

              Thanks Miss Ellie 😘😘😘
              Foxes Never Quit πŸ’™

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                #8
                Well done Music man's wife for starting this thread. I couldn't agree more.

                Ellie has so much empathy and understanding and will respond to any question with a sound and diplomatic response. I know you don't like praise, Ellie but we love and appreciate you xxxπŸ˜˜πŸ’•πŸ€—

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                  #9
                  I love this thread as Ellie helps us all with her knowledge, compassion and understanding. She is an amazing advocate for MND.

                  Thank you Ellie πŸ’• xx
                  Diagnosed 3rd November 2021 Bulbar Onset

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                    #10
                    Couldn't agree more!! Hopefully Ellie isn't still beetroot red from when this post was started!
                    Ellie right from my first questions and confusion with what was happening with me and not understanding my consultant letters, you were kind, helpful , patient and so damn lovely to me. I will never forget and admire all your time and knowledge and assistance you give every single person who posts on here. I hope you are aware of how much we all think of u and appreciate you. Have a treat tonight on us!! Thank you Ellie. Xx
                    Diagnosed June 2022. Confirmed MND which is currently PLS. Limb onset.

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                      #11
                      I agree with everyone above. I haven't posted much myself, but read this forum every day and am so impressed with Ellie's advice and support. We are indeed lucky to have her - thanks Ellie.
                      Diagnosed November 21, ALS limb onset, started in right hand June 2020

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                        #12
                        Ellie apart from your amazing knowledge about things, your warmth and kindness and humour, I really appreciate the effort you put in daily to answer people’s questions, looking up links for people, and typing it all with eye gaze. Very grateful, this forum wouldn’t be the same at all without you xxx
                        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                          #13
                          I've got to jump on this bandwagon and give my thanks to Ellie too. xx Bless you xx
                          Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicated with eye gaze

                          Sense of humour intact throughout.

                          Sadly passed away peacefully 2/9/22

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                            #14
                            I agree with all the above! I haven't been on this forum long but it doesn't take long to realise that what Ellie doesn't know about MND probably isn't worth knowing! It's so much more than just knowledge though, it's the humour, empathy and kindness that accompanies it. Thanks Ellie

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                              #15
                              Totally agree. I asked Ellie a while back if she was a doctor due to her massive knowledge of medical information not only about MND but general medicine. She told me she wasn’t! You are fab Ellie. So take it on the chinπŸ₯°πŸ₯°


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