These days I literally can’t hold my drink. I don’t have the strength to lift the glass! So, like many of you I drink through a straw. I have some reusable plastic ones and lots of paper ones. They’re ok but recently a friend bought me a box of glass straws (Aldi). Absolute game changer. So much nicer having a cold beer with the feel of glass rather than paper. Doesn’t sound like much but there you go, definitely recommend them.
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I was contemplating straws for Stephen as hes forever dribbling and I'm forever wiping. Thing is he seems to be having trouble sucking. I was thinking its because he has only got his bottom teeth but I'm pretty sure it's to do with lack of suck. His roll ups are forever going out because they seem to have gone soggy before hes made an effort to suck. Anyone else have this problem?
George has just been sick on the rug 😳when i can think of something profound i will update this.
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I use metal straws that I bought from Amazon. They are extra long too which is handy. Not thought about a glass straw... I'd be worried I might break it maybe?
denise - don't try using a straw to clean up sick... doesn't work 🤣Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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Originally posted by denise View PostI was contemplating straws for Stephen as hes forever dribbling and I'm forever wiping. Thing is he seems to be having trouble sucking. I was thinking its because he has only got his bottom teeth but I'm pretty sure it's to do with lack of suck. His roll ups are forever going out because they seem to have gone soggy before hes made an effort to suck. Anyone else have this problem?
George has just been sick on the rug 😳
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Originally posted by Tony View PostI prefer the glass ones. They’re quite thick so not at risk of breaking.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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We went through using straws and did have some glass ones, then some longer narrower metal ones that could be "clipped" to the top of the glass or cup.
Unfortunately no longer suitable but worked well for a while. Now have long spouted soppy cups for very limited thickened coffee.
Interestingly we now also have the jaw clamping usually when I am cleaning his teeth so have stopped using the electric toothbrush which seems very brittle and I worry about it shattering so back to a manual brush which gets clamped between his teeth.Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicated with eye gaze
Sense of humour intact throughout.
Sadly passed away peacefully 2/9/22
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