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    I made a song

    Making music with MND is a lot more challenging than it used to be, but it’s been vital having something to focus on and work towards in this situation.

    I managed to record a guitar part while I could still play and luckily my voice is still unaffected so I was able to record myself singing. The rest is software instruments and samples with notes mostly drawn in using the mouse. Very time consuming but worth it in the end I think.

    Here’s the Spotify link: https://open.spotify.com/track/5w3MJ...RSCzsevZ-6aadg

    I’m on other streaming services too. Just search for Alex Herd.


    #2
    Excellent, the sort of stuff that sits comfortably within my eclectic tastes.
    Good on you for pushing forwards.

    I was playing the harp to an acceptable mediocre level, but kept wondering why my arms ached when playing or the odd inexplicable lever clumsiness.
    Only had a small practice type harp (33 strings) - but gave it to a very respected strings musician / composer friend (who used to tune it and has some vulnerabilities in life), as a 'prop' to explain my diagnosis and that it "needed looking after"

    Doing some creative things I used to do now 'less effectively' is a mental / emotional struggle between pushing things and adapting, versus reinforcing the obvious decline...
    (Pic is early 2020)
    Attached Files
    Last edited by Arcadian; 20 December 2022, 18:53. Reason: spelling
    2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
    Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...

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      #3
      Well done you.
      when i can think of something profound i will update this.

      Comment


        #4
        Wow Arcadian your picture manages to make a harp look Glam Rock!
        I was learning guitar with the Fender online course before the lurgy struck and knackered my left fretting hand
        alexph I always fancied a bit of electronic composing, but despite having some history as a singer my voice is too far gone now.
        My son does some composing as soundtracks to his videos. I will get him to show me the ropes.
        Hi, I'm Eddie.
        Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
        Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
        Still wondering what the future will bring.

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          #5
          Thanks for taking the time to listen. Loving the red leggings Arcadian

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            #6
            alexph I really like it, Alex, thanks for sharing - and it's all the more impressive considering your challenges.

            Did you make the video too? xx


            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              Thanks! I haven’t made a video but maybe I will later. I would need a lot more help for that but can still make music mostly on my own. I’m working on another track at the moment

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                #8
                Originally posted by alexph View Post
                I’m working on another track at the moment
                If you need any backing singers, you know where not to look 😉😁
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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