Best wishes folks, I keep Xmas quite simple round with my elderly folks, but thank you for helping my embarkation upon this strange journey and sharing your own experiences...
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2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)... -
Arcadian Right back at you, Dan xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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merry Christmas all xxComment
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Wishes from me xxwhen i can think of something profound i will update this.Comment
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Hope you all had a good one folks.
Enjoyed my Christmas dinner. Petty sure that if I make it to next Christmas I will be taking it through a tube by then
Hope the New Year brings you all good things.
Stay positive.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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