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  • Terry
    replied
    Hi Dina,

    We all have such drab life's, so what's happening in that exciting place?

    I'm at the gym overlooking a pool full of women, but yet to have coffee and my nut and fruit snack.

    Hope you are feeling well.

    Love Terry

    Leave a comment:


  • Gillette
    replied
    Thanks for your support, Ellie. I can understand the logic of worrying less when it's gone.

    Leave a comment:


  • Ellie
    replied
    I'm sorry you're going through this difficult stage of progression Dina. I think it's the toughest stage - the week on week realisation of function loss is terrifying.

    Once it's gone, you tend to not worry as much, which does sound strange. There's nothing else to lose...

    I am so used to being dependent on people doing everything for me now, it doesn't faze me but it was tough in the beginning.

    I remember my then newly independent 4y.o. cutting up my food for me and saying, "Now I can cut up your food mummy just like you cut up mine when I couldn't".

    I had visions of you as the Tin Man from Wizard of Oz, complete with oil can

    I am not liking this lakrk of it getting dark just after 9pm

    Love Ellie.

    Leave a comment:


  • Gillette
    replied
    Hi Ellie,

    Thanks for asking. The boredom has passed but today has been hard. On Saturday I started needing someone else to wash my face and brush my teeth and today I've started needing help with cutting up food. At the moment it almost feels as though every day some ability is lost.

    Yes, I've been having some physiotherapy. Phew! Just avoided the WD40!
    How are things with you?

    Leave a comment:


  • Ellie
    replied
    Hi Dina,

    How are you holding up??

    Do you get any physiotherapy when you're in there? Don't want you seizing up in there or we'll have to send in some WD40 to you

    Love Ellie.

    Leave a comment:


  • Kayleigh
    replied
    I expect all the girls love you in Tesco's too TC!

    Hugs,
    Kayleigh x

    P.S Don't forget to collect your clubcard points every time you shop in Tesco's! I like to save my points up to spend on lots of treats at Christmas.
    Fun fact: In exactly 4 months time, it will be Boxing Day!

    Leave a comment:


  • Terry
    replied
    Hi Kayleigh,

    My wife did buy some windex tablets, they did not work on her.

    I was thinking Rocket Man and not, Candle in the Wind.

    I hardly ever went shopping with my wife before I had Mnd but now it's the highlight of my week.

    I don't know the girls in this Costa so well,, so I am all nice in their eyes.

    Love Terry

    Leave a comment:


  • Doug Carpenter
    replied
    Many thanks Dina.

    Done

    Doug

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  • Gillette
    replied
    Hi Barry,

    I used to work in Yeovil when I was living in Somerset. I miss being in Somerset. It's very different to Greater Manchester!

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  • Gillette
    replied
    Doug, I think you need to delete some of your messages.

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  • Kayleigh
    replied
    Hi Terry,

    Enjoy your retail therapy in Tesco's TC (My hubby always loves going shopping with me - especially grocery shopping supermarkets! LOL).

    Lunch afterwards sounds good - and if you are you going to be entertaining the cafe girls with your music again ....'Wind beneath my wings' by Bette Midler or 'Blowin' in the Wind' by Bob Dylan might be a good choice? LOL

    I hope you have an enJoyable afternoon.

    Love Kayleigh x

    P.S Perhaps add a pack of 'Wind-Eze' tablets to your shopping list??
    Last edited by Kayleigh; 26 August 2019, 19:48.

    Leave a comment:


  • Terry
    replied
    Hi Barry;

    At least you done it and safely. Maybe be I need a people carrier and people pushing my bum, it could release so much wind I'll be off to the moon, or blow my trousers off and i do a moony,

    Sue; sorry to hear of Steve's problems, it makes mine so trivial in comprising. Being jailed in in the evenings like that, with crazy people must be hell. Hope his feeling a lot better and can find somewhere more peaceful like a hospice or home. I guess there's some humor in him telling you the nights events.

    I'm off to tesco's soon and costa's for lunch, so I'm lucky really. LOL

    Love Terry

    Leave a comment:


  • Sheila
    replied
    Barry, you were down my neck of the woods. Somerset. What happened to Newcastle yesterday, they won. Quite a shock result. But well done.
    Sheila x

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  • Barry52
    replied
    Originally posted by Gillette View Post
    Hi Barry,

    Of course I don't mind you talking about your lovely weekend. I am always envious of those sitting in miles and miles of traffic jams, Ha ha ha. Presumably you were on the A303 and the notorious section near Stonehenge. Where were you headed?
    Yes Dina it was the A303 and we were heading to Yeovil. We took a taxi from the hotel into town for dinner but they sent a people carrier so you can imagine me trying to get in. My wife and the driver both pushing my bum. No dignity with MND.

    Barry x

    Leave a comment:


  • Gillette
    replied
    Originally posted by Sueb View Post
    Steve gets terrible wind, don’t know how many times he had a bed man yesterday!!!,

    Sue
    Thank you, Sue, particularly for the amusing images that popped into my head when I read your final sentence.

    Leave a comment:

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