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  • Sueb
    replied
    I can relate to your boredom in hospital Dina. Steve has been in for nearly two weeks now. He is so bored. There are four beds in his bay and the men come and go and he is still there.. He cannot move at all and he cannot turn his head so only looks forward and to the left.. there are some strange men they don’t speak some are to ill to at first. Things seem to be worse at night. One young man kicked off because doors were banging, then last night a man opposite, who they wanted to stay in bed was walking up and down the ward swearing.. if I wasn’t there in the day I think he would go mad. Hopefully both of you will be home soon. I know I can’t wait! Most of the staff are really nice and Steve can talk to them when they aren’t busy.

    I can also relate to your wind problem Terry. Steve gets terrible wind, don’t know how many times he had a bed man yesterday!!!,

    Sue

    Leave a comment:


  • Ellie
    replied
    Originally posted by Deb View Post

    I have also tried to learn Spanish by doing an hour a day on duolingo but I strongly suspect I am still rubbish. Last time we were in Spain we had some decorators. I thought I had offered them a drink but apparently I had invited them for dinner. They looked slightly alarmed and I couldn't work out why.
    Oh Debbie, that's hilarious, I can just picture the scene

    Love Ellie.

    Leave a comment:


  • Gillette
    replied
    Hi Debbie,

    Thank you. Luckily I haven't had to resort to cricket *phew

    I don't know about anyone else but, since developing MND, I hardly notice when the weather is hot. Before MND I couldn't cope with temperatures above 22°. It feels so peculiar being able to tolerate heat.

    Leave a comment:


  • Gillette
    replied
    Originally posted by Kayleigh View Post
    Hi Dina and Sheila,

    I can empathise about how difficult and time consuming it is to get washed and dressed with weaker hands. I tend to use a toothpaste pump rather than having to squeeze a toothpaste tube but even that is taking more effort these days. I saw an automatic toothpaste dispenser on the Internet which might be easier to use - but I suppose it depends on how much strength is needed to push the toothbrush against the lever in the dispenser?

    http://https://m.youtube.com/watch?v=enkNtS2RlSQ

    Did you see 'Who Wants To Be A Millionaire?' on TV last night? - I'm looking forward to seeing If the junior doctor continues to do well in the next episode tonight (he's currently on £64k with 3 lifelines left).

    Love Kayleigh x
    Hi Kayleigh and Sheila,

    Actually, I'm not able to brush my teeth or wash my face any longer. And I haven't been able to wash myself for a few months. I'm like the Queen: someone has to do those things for me. Hee hee hee.

    Leave a comment:


  • Deb
    replied
    Hi Dina,

    So sorry you're understandably bored and fed up. Although the sunny weather is beautiful it makes it hard if you cant go out. You must be stir crazy.

    I have been confined to barracks with my leg since June. It's been easier for me, however because I have been mainly at home.

    I started off being entertained by Wimbledon ( seems like ages ago ) online quizzes, box sets and books and recently I have had to resort to cricket. I have got really into it so I must have been bored ! I have also tried to learn Spanish by doing an hour a day on duolingo but I strongly suspect I am still rubbish. Last time we were in Spain we had some decorators. I thought I had offered them a drink but apparently I had invited them for dinner. They looked slightly alarmed and I couldn't work out why.

    I cant complain because I am able to go out in our WAV for a little while now and drive my powerchair into the garden. I really hope you are comfortable and cool Dina and that you have your PEG fitted soon so you can get home, with the carers you need.

    Love Debbie x

    Leave a comment:


  • Gillette
    replied
    Originally posted by Barry52 View Post
    M
    We resumed our journey on Saturday with only 80 miles to go but it may have been 200 as we sat in huge traffic queues past Stonehenge. We were going to see our niece’s baby son who is only 6 days old and since members of both family’s were present it was good to catch up. My voice wasn’t working well so my wife ended up translating. What I did find interesting in discussion with my brother in law is that his son is a professor in the field of science and he is currently working with a company on gene editing for neurological conditions. Maybe one day he will eradicate MND.

    Back home now after 4 hours in the car but the return journey was easy. I hope you don’t mind me speaking of my enjoyable weekend Dina when you are stuck in hospital but I hope that the story will cheer you up.

    I trust you will be home soon and I wish you well.

    Barry x
    Hi Barry,

    Of course I don't mind you talking about your lovely weekend. I am always envious of those sitting in miles and miles of traffic jams, Ha ha ha. Presumably you were on the A303 and the notorious section near Stonehenge. Where were you headed?

    Leave a comment:


  • Gillette
    replied
    Originally posted by Ellie View Post
    Great song TC but did you ever listen to its lyrics? Quite explicit to play to a bride-to-be, or maybe that was your last ditch plan to have her call off the wedding

    Any idea if your windy issue is food related? I won't try and compete with you by recounting my own loo adventures & exploits

    Love Ellie.
    Oh no, so now we are descending into the realms of toilet humour!!!

    Leave a comment:


  • Gillette
    replied
    Originally posted by Sheila View Post
    Hi Dina,
    I know what you mean about the fingers, hands and legs not working. Mine are the same. Getting the top on the toothpaste is a long old job.
    I can't match Terrys wind story, but it was really entertaining
    I am thinking of you and hoping something exciting will happen this afternoon. If you like football Tottenham and Newcastle are playing at 4pm on sky.
    Sending best wishes
    Sheila x
    Hi Sheila,

    I shall show my grandson your message as he loves football and I hate it. He often wears his football kit when he comes to visit, because he knows I don't like it. He also tries to wear green as he knows how much I dislike it!

    Leave a comment:


  • Gillette
    replied
    Originally posted by Ellie View Post
    I'll bet you are bored Dina

    Any fun happening on the ward? There's only so much "I spy" one can handle!!

    Mind you, with Sunday afternoon visitors piling onto the ward, you may have some distraction in people watching - then wanting the noisy rabble to leave and for peace to resume...

    Hang in there.

    Love Ellie.
    Hi Ellie,

    The visitors are much quieter than when I was on this ward previously, so there hasn't been a problem.

    The staff are lovely - lots of real characters.

    Leave a comment:


  • Gillette
    replied
    Originally posted by Terry View Post
    I'm afraid that it controls my life, to a certain extent, Dina,

    I trust that you have finished your lunch by now.

    I have done seven moves in my online chess games, just thought you might be interested.

    Also played,, You're Gorgeous by Babybird, to one of the cafe girls that is getting married in ten days.

    Love Terry
    I love that song - it's so great to sing at the top of one's voice! I've always told my sons (who used to beg me to stop singing it!) that it has to be played at my funeral, so that they know it's me in the box!

    After talking about your wind, I wondered what was coming when you mentioned seven moves! Ha ha ha!

    Leave a comment:


  • Kayleigh
    replied
    Hi Dina and Sheila,

    I can empathise about how difficult and time consuming it is to get washed and dressed with weaker hands. I tend to use a toothpaste pump rather than having to squeeze a toothpaste tube but even that is taking more effort these days. I saw an automatic toothpaste dispenser on the Internet which might be easier to use - but I suppose it depends on how much strength is needed to push the toothbrush against the lever in the dispenser?

    http://https://m.youtube.com/watch?v=enkNtS2RlSQ

    Did you see 'Who Wants To Be A Millionaire?' on TV last night? - I'm looking forward to seeing If the junior doctor continues to do well in the next episode tonight (he's currently on £64k with 3 lifelines left).

    Love Kayleigh x

    Leave a comment:


  • Barry52
    replied
    Hello Dina,

    After Terry’s tale of wind, I relate my weekend which I hope is more uplifting (wind required).

    We set off on Friday for a 140 mile drive to Newbury where we spent the night to break our journey. Traffic wasn’t too bad heading south but I wouldn’t have been happy if I were heading north. It reminded me of my journeys when I lived in Hampshire and would drive north on a Friday to see my parents in Newcastle.

    Yes Sheila I’m a Toon supporter.

    We resumed our journey on Saturday with only 80 miles to go but it may have been 200 as we sat in huge traffic queues past Stonehenge. We were going to see our niece’s baby son who is only 6 days old and since members of both family’s were present it was good to catch up. My voice wasn’t working well so my wife ended up translating. What I did find interesting in discussion with my brother in law is that his son is a professor in the field of science and he is currently working with a company on gene editing for neurological conditions. Maybe one day he will eradicate MND.

    Back home now after 4 hours in the car but the return journey was easy. I hope you don’t mind me speaking of my enjoyable weekend Dina when you are stuck in hospital but I hope that the story will cheer you up.

    I trust you will be home soon and I wish you well.

    Barry x

    Leave a comment:


  • Ellie
    replied
    Originally posted by Terry View Post

    Also played,, You're Gorgeous by Babybird, to one of the cafe girls that is getting married in ten days.
    Great song TC but did you ever listen to its lyrics? Quite explicit to play to a bride-to-be, or maybe that was your last ditch plan to have her call off the wedding

    Any idea if your windy issue is food related? I won't try and compete with you by recounting my own loo adventures & exploits

    Love Ellie.

    Leave a comment:


  • Sheila
    replied
    Hi Dina,
    I know what you mean about the fingers, hands and legs not working. Mine are the same. Getting the top on the toothpaste is a long old job.
    I can't match Terrys wind story, but it was really entertaining
    I am thinking of you and hoping something exciting will happen this afternoon. If you like football Tottenham and Newcastle are playing at 4pm on sky.
    Sending best wishes
    Sheila x

    Leave a comment:


  • Kayleigh
    replied
    Hi Terry,

    How lovely of you to play the cafe girl a song - you are such a thoughtful romantic TC!

    I tried online chess but couldn't manage to beat the computer (even at the easiest level!) I can remember what move each chess piece can make but it's the strategy side of the game that I'm not very clever at. Draughts is probably better for me!

    Love Kayleigh xx

    P.S. Have you won a game of online chess against CC yet??! LOL

    Leave a comment:

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