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    MND Symptoms

    Hi All. Sorry to bother you all but just a quick run down of my symptoms and worries.

    I'm a 44 year old male, had Muscle Fasciculations in my calves (although mainly my left calf) for a month, very uncomfortable feeling, like worms crawling beneath my skin. This occurs mainly at rest or when I'm driving.

    I occasionally get them in my arms and thighs too but the calf fasciculations are constant.

    I also have an ache/weakness in my left bicep. An example, I clapped at an event recently and my left bicep ached. Also feels aching and weak when carrying things.

    I went to my GP with my concerns and MND was mentioned but first we have to rule out other less sinister reasons, I have blood tests organised for monday. If they come back clear they will send my case to a Neurologist.

    Any help/advice greatly appreciated as I'm understandably a bit scared.

    Thank you for taking time to read this.
    Last edited by BRETAGNE; 29 November 2019, 14:42.

    #2
    Hi there. Your situation mirrors mine. I am 45 year old male and basically have/had the same symptoms as you describe. the experts will answer but i don't think you have to much to worry about.

    I have also 'felt aching and weak' in certain parts but MND would normally herald a definitive weakness I think. In other words instead of aching and weak when carrying things, you would be more likely unable to do it.

    I am on a sertraline anti depressant, only recently and my twitches had increased. Two nights ago, I was awake all night with twitching that was waking me up.

    I read that anti depressants can increase twitching. I stopped taking it two days ago and it has definitely decreased. I mention that incase you are in a similar position. i have an MRI next week which is not going to detect MND, more to check MS I think but as my twitches have lessened and the weakness has gone, I am more relaxed.

    BFS presents itself as a feeling of weakness but has no impact on the clinical performance. it sounds like although feeling weak, the 'weakness' is not impacting on the clinical performance so I would say they are likely to be benign.

    There is definitely a relationship when I felt anxious they got worse. I hope this helps.

    Comment


      #3
      Thanks for your reply, you have put my mind at rest a little with that reply.

      You noticed I struggle with Health Anxiety I take it?

      Btw my heart goes out to all of you suffering with MND. ❤

      Comment


        #4
        Hi Bretagne and welcome to the forum;

        Sorry to hear you've got problems. I believe it's unusual to get trouble with the bicep before the lower areas of that limb. I can relate to having bugs crawling beneath the skin but not so sure about the rest of the symptoms.

        It could still be so many things, so you're have to have some tests. Sounds like your Doctors on the ball with blood tests. Get refereed asap, Doctor can always cancel it if not required.

        Best wishes, Terry
        TB once said that "The forum is still the best source for friendship and information."

        It will only remain so if new people post and keep us updated on things that work or don't work and tips.

        Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

        Comment


          #5
          Thanks for your reply Terry. I'll let you know how I get on if you don't mind.

          Comment


            #6
            It's always nice to know how people get on, keep us updated with things.

            Love Terry
            TB once said that "The forum is still the best source for friendship and information."

            It will only remain so if new people post and keep us updated on things that work or don't work and tips.

            Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

            Comment


              #7
              Hi BRETAGNE,

              MND Connect are offline until Monday, so I’ll try give you some perspective on your issue.

              Unless I’m missing a part of the picture, based on twitching alone, I’m quite surprised that “MND was mentioned” - was it the you or the GP who mentioned it? Limb onset MND usually begins distally, i.e. in the hands or feet and people notice they cannot do things, rather than how their muscles feel.

              Did the GP do a brief clinical exam? Strength test, getting you to touch your nose, check your reflexes and the likes. Or what did the visit entail?

              Twitching is very common and happens for a multitude of reasons, the vast majority of them benign. Given your health anxiety issues, it’s good your GP is doing tests to try find out what’s behind your symptoms.

              Take care and hope you’ll only be a transient Forum member.

              Love Ellie.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              Comment


                #8
                Thank you for taking time out to reply Ellie.

                I mentioned MND, the DR replied that 'it could be' so I suppose I opened myself upto it.

                The calf fasciculations are constant and seemed to worry my GP, we did the touch your nose test and they also had me standing on my heels, is that a standard test?

                Any replies are greatly appreciated.

                Comment


                  #9
                  Yes, I thought you might have mentioned MND, not the GP. GPs rarely know MND, or many neurological illnesses, as they're quite specialised in their presentation, so will always refer on. Yes, those simple tests are standard to check for any function failures - I presume you'd no difficulties doing them or you'd have mentioned it?

                  You probably know that your health anxiety, which can result in real physical symptoms, needs your GP's intervention too - it can quickly get out of control and take over your life, which is obviously NOT what you want....

                  Hopefully the doctors will soon get to the bottom of your issues.

                  Love Ellie.
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  Comment


                    #10
                    What a lovely reply Ellie, thank you.

                    I had no problem with the nose issue, not brilliant on my heels but okay and fine on tip toes too.

                    I'll see what these blood tests bring Monday but until then I feel reassured. Thanks again for taking the time out to reply to me.

                    Stuart

                    Comment


                      #11
                      Hello Bretange,
                      I was so sorry to hear of your recent health problems. Many healthy people experience muscle twitching, and these are not usually a cause for concern. Often this symptom can be caused by or exacerbated by stress, lack of sleep and caffeine consumption. With regards to the pain and weakness in your bicep you experienced after prolonged clapping or when carry things, - again this is not something that we would associate with an MND diagnosis.
                      I do hope that your GP is being supportive of you and that you are seeking help for your health anxieties.
                      Regards
                      Ruth
                      MND Connect
                      Contact us on 0808 802 6262 or at [email protected]

                      Comment


                        #12
                        Hi Ruth

                        Thank you for your reply, like others that have replied to me it means a lot.

                        Appreciate you taking the time out to put my mind at rest.

                        Stuart

                        Comment


                          #13
                          Good evening all. I've been to the GPs today and thought I'd give you an update.

                          All my bloods came back good, which I thought would be a worry but after another examination my DR said it's very unlikely it is MND as I show no other signs other than Fasciculations.

                          The weakness I've felt isn't clinical so I've been told a neurologist is not necessary.

                          The fasciculations could be benign or caused my anxiety, caffeine or the gym work (which I started a few month's ago).

                          Was told if I do start feeling any Weakness then to go back but to take away any anixety and enjoy Christmas and the New Year.

                          Can I take this opportunity to thank all who read and replied to me and wish you all the best going forward.

                          Thank You

                          Stuart

                          Comment


                            #14
                            Thanks for taking the time to update us Stuart.

                            I hope you can focus on your wellbeing now - make sure you're well hydrated, eat well, sleep well and get fresh air.

                            Treat yourself too - doesn't need to be an expensive Spa Day - buy that jumper you had your eye on, go to a movie, meet your friends or whatever. Remember, you're worth it !!!!

                            Wishing you all the best.

                            Love Ellie.
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              Thank you Stuart for taking the time to let us know. It's good that your GP is supportive.

                              Take care of yourself and enjoy Christmas and new year.

                              Love Debbie x

                              Comment

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