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hair loss on legs ?

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    hair loss on legs ?

    is it common to loose hairs on legs or other extensions during this disease ?

    i loose hairs especially around ankles and back of my both legs ( calves )

    is that because of als or is it because of the motionlessness resulting from als?

    Hi Tim,

    Not heard of hair loss but quite often the opposite.

    Calves could be down to sitting a lot and having weight on them,

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


      Hi Timm,
      Thank you for your forum post.
      Hair loss is not something that we would normally associate with MND. But it could possibly be as a result of friction from clothing, or even bedding.
      Kind regards
      MND Connect
      Contact us on 0808 802 6262 or at [email protected]


        Tim, luckily I had no hair loss on run up to Christmas. I grew my beard and the young grandkids liked me be Father Christmas.


          Hello Timm,

          I had some temporary hair loss from my head - GP said it was caused by stress which was caused by the shock and upset of being diagnosed with MND. So, although not directly caused by MND, it was still MNDs fault that my hair started to fall out.

          Hair started to grow back again after a couple of months (but am still keeping my Dolly Parton wig on standby just in case some of my hair does another disappearing act!).

          My nails are much stronger than they used to be and so no need to use my set of falsies (nails!) like I used to. (Yes, I still have a full set of my own teeth).

          No hair turning up where it shouldn't for a lady, and so I won't be trying to compete with John (Jay Tee) or Terry in the next annual 'best Father Christmas beard' contest!

          Best wishes


            Since getting my preliminary diagnosis my hair has gone to pot and my tmj is bad I think as I'm subconsciously tensing it.


              Ive never had hair on the backs of my calves. Maybe your a lycanthrope? πŸ˜‰πŸ˜‚πŸ˜πŸ˜Šxx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx


                what is a lycanthrope? think hair condition and loss is due to stress. losing it on the legs is usually due to something rubbing against them like sitting for long periods. hormone production or lack of will probably do the same.
                when i can think of something profound i will update this.


                  A lycanthrope is a werewolf πŸΊπŸ˜‰πŸ˜‹πŸ˜Žxx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx