Hi there,
I wanted to write my concerns out here, seeing as you all provide such helpful insights and information.
For the last few months I've experienced a set of symptoms. And they've progressed more noticeably in the last few weeks. I’ve got right arm weakness, right leg weakness, that is leading to a very heavy foot that often leads it to buckle when walking. My right hand has a weak grip and feels really odd.
I've also got persistent fasciculations in both limbs. The left leg and left arm are now also showing signs of weakness and the twitches are becoming more noticeable in them.
I have recently observed my voice begin to stammer and tremor along with my body's fasciculations. My eye sight is also quite blurry when I scan a room, or situation. And it often feels like I'm breathless, especially at night when lying down. Lower back pain is also present.
I’m 26. My mother who's 65 was not so long diagnosed after having symptoms for over a year, and a very noticeable dropped foot.
From what I'm aware, my mother is the only one I know has had a definitive diagnosis. I do not know my father's side, but know his family, as well as my mother's has had dementia and Alzheimer’s in its lineage but no other case of MND that I know of. So technically I don’t know if it would be familial MND that I could possibly be presenting, or just an unbelievable case of two family members having sporadic MND at the same time.
My mother has not yet been gene tested, but I will encourage her to do so, as I realise that will be an important step in the process. My GP is attempting to fast track my neurologist app, but it's seemingly going to be another 3 nerve wracking months until I'm in there - probably with worse symptoms. At this point, I'm praying it's CIDP or something else.
Any help, much appreciated, I'm very anxious currently and feel absolutely awful for my brother as he may have to care for two people on his own if I am diagnosed.
Best,
Darius
I wanted to write my concerns out here, seeing as you all provide such helpful insights and information.
For the last few months I've experienced a set of symptoms. And they've progressed more noticeably in the last few weeks. I’ve got right arm weakness, right leg weakness, that is leading to a very heavy foot that often leads it to buckle when walking. My right hand has a weak grip and feels really odd.
I've also got persistent fasciculations in both limbs. The left leg and left arm are now also showing signs of weakness and the twitches are becoming more noticeable in them.
I have recently observed my voice begin to stammer and tremor along with my body's fasciculations. My eye sight is also quite blurry when I scan a room, or situation. And it often feels like I'm breathless, especially at night when lying down. Lower back pain is also present.
I’m 26. My mother who's 65 was not so long diagnosed after having symptoms for over a year, and a very noticeable dropped foot.
From what I'm aware, my mother is the only one I know has had a definitive diagnosis. I do not know my father's side, but know his family, as well as my mother's has had dementia and Alzheimer’s in its lineage but no other case of MND that I know of. So technically I don’t know if it would be familial MND that I could possibly be presenting, or just an unbelievable case of two family members having sporadic MND at the same time.
My mother has not yet been gene tested, but I will encourage her to do so, as I realise that will be an important step in the process. My GP is attempting to fast track my neurologist app, but it's seemingly going to be another 3 nerve wracking months until I'm in there - probably with worse symptoms. At this point, I'm praying it's CIDP or something else.
Any help, much appreciated, I'm very anxious currently and feel absolutely awful for my brother as he may have to care for two people on his own if I am diagnosed.
Best,
Darius
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