Announcement

Collapse
No announcement yet.

Opinions please

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Opinions please

    I am seriously considering having my upper incisors removed before I go completely mad. I am missing one of my front teeth already so is it a good idea?

    #2
    MND Connect are off until Tuesday, Matthew.

    May I ask in the meantime - in what way are they driving you mad(I hope you're not in pain...) and are you talking about having all of the other 3 upper incisors removed? Has your dentist suggested anything?

    Love Ellie.
    Last edited by Ellie; 23 May 2020, 16:13.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

    Comment


      #3
      Hi Ellie, I am drawing blood most days from my lips and tongue as my jaw has moved. I haven't been able to find a dentist at this present time but what I want is the canine not incisors removed, my bad 😊

      Comment


        #4
        Oh I can empathise!

        My jaw hangs too but my upper teeth overhang my lower teeth, so I only chomp my cheeks when I sneeze I wear a light gumshield in bed, which my dentist made, and I guess I could wear it for most of the day too, if needed (obvs not if eating and, as I can't speak, that wouldn't be a consideration for me)
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
        Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          Just a thought but I live with MND 24/7 and nights and weekends are probably the hardest times to get through, I don't feel like calling the Samaritans just yet but at least I know I can call them at anytime. I'm not having a go I'm just saying.
          Love Matthew

          Comment


            #6
            Hi Matthew

            I'm sorry to hear about the problems that you are having. It must be very unpleasant and uncomfortable for you. We would suggest speaking to a dentist to discuss having teeth removed.

            I am sorry that we weren't available over the weekend. As a non-emergency service, we aren't available at weekends. We do, however have an evening helpline which is run by experienced volunteers. They are available between 7pm-10:30pm Monday-Friday on 0808 802 6262.

            Best Wishes

            Rachel
            MND Connect Adviser

            Comment


              #7
              Thanks Rachel, I was having a bad day my bad. Sorry.

              Comment


                #8
                Originally posted by matthew55 View Post
                Thanks Rachel, I was having a bad day my bad. Sorry.
                Please don't apologise. It's completely understandable that you would want someone to contact. Please be assured that we will always try to respond to you as soon as possible

                Best Wishes

                Rachel
                MND Connect Adviser

                Comment

                Working...
                X