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  • MNDConnect
    replied
    Dear Baishui your post has come through to the helpline team MND Connect. If you have any questions or you feel we can provide help and support please do not hesitate to contact us.

    With kind regards

    Jacqui Roughton
    Senior MND Connect Advisor

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  • Guest's Avatar
    Guest replied
    hi

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  • Guest's Avatar
    Guest replied
    Hi kernowmum, whereabouts in Cornwall are you? I am between Truro and Redruth. How are you finding the process? MND Connect are brilliant and this thread is a great idea - thank you

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  • MNDConnect
    replied
    Hi Buttercup,

    I am glad to hear that you have found the support and information we have provided to you and your family helpful.

    We are here to support not only your brother but the whole family, so please do not hesitate to contact us if there is ever anything we could do.

    Kindest Regards,

    Adele
    Last edited by MNDConnect; 22 March 2016, 15:03.

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  • Guest's Avatar
    Guest replied
    Another huge thank you for your help, support and advice, my brother has mnd, diagnosed december 2016, and you have all been so helpful, to him, his family, and myself Thank you all

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  • MNDConnect
    replied
    Hello Kernowmum

    I am pleased that you are finding the forum helpful. It's a really good place to get support and pick up tips.

    If you have any questions or if there is anything that we can help with then please do not hesitate to ask us. You can post any questions on here or you can contact us directly via email on [email protected] or on Freephone 0808 802 6262.

    Best Wishes

    Rachel

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  • kernowmum
    replied
    Hi MND Connect.
    I am a new members, I care for my partner who was diagnosed with MND 3 years ago. It is great to be able to read through others peoples journey and hopefully pick up some tips to help us along the way
    Thank you

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  • MNDConnect
    replied
    Hello Sharon

    Thank you for your kind comments. If there is anything further that we can do to help then please don't hesitate to contact us.

    Best Wishes

    Rachel

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  • Guest's Avatar
    Guest replied
    Hi mnd connect
    Dnt no where I would be without ur help and support over the phone as its my mum who's has the thing, obviously still new diagnosis so very sad and extremely emotional, kinda in denial I guess to,
    Xx

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  • Guest's Avatar
    Guest replied
    That is really interesting. Thank you.

    Sadly I was never overweight so can't manage that bit but I have been eating high fat and high carb foods anyway since I was diagnosed so while I can still eat that is obviously something worth continuing to do. It is a good thing I am addicted to pork pies at the moment!

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  • MNDConnect
    replied
    Morning Susan,

    Thank you for your question.

    With regards to the effect diet may have on MND. We aware of a small study carried out in the USA which highlights the potential benefits of eating a high calorie, and high carbohydrate diet. The studies findings were published in The Lancet in February 2014, and although the researches acknowledge that there needs to be further studies, it appears that the initial outcomes of the study were quite positive.

    A brief outline of the findings were as follows -

    Loss of weight, both muscle and fat, is common as ALS [MND] progresses, and patients experience more difficulties eating, swallowing, and maintaining their bodyweight. Recent work suggests that these problems might also contribute to the course of the disease: patients who are mildly obese are more likely to live longer, and mice carrying a gene which causes ALS lived longer when they were fed a calorie-rich diet high in fat.

    A good way of fortifying foods is to add cream and butter to things like mash potato. So it really is a matter of not watching the calories and eating a wide range of foods as you possibly can.

    I do hope this is helpful Susan.

    Kind regards

    Ruth

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  • Guest's Avatar
    Guest replied
    I think this is a great idea. I suspect this is a bit late on a Friday but I have a question. Not sure if it is a bit controversial though.

    Does what you eat have any impact on MND? Are there worthwhile supplements really?

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  • Guest's Avatar
    Guest replied
    My mistake , sorry Rachel. Dude

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  • MNDConnect
    replied
    Hello Dude

    We aren't aware of any posts on this thread by Graham.

    However, we are glad to now be able to help people regarding questions about motor neurone disease.

    Many Thanks

    Rachel

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  • Guest's Avatar
    Guest replied
    Hi Adele Give us a song luv. Dude x

    Didn't Graham post on here ?.

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