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AGM: Prof. Dame Pamela Shaw's Presentation

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    AGM: Prof. Dame Pamela Shaw's Presentation

    Please can you provide a link to Prof Shaw's presentation, it was on your website yesterday but I cannot find it today.

    Thanks

    #2
    John, I posted this link yesterday.



    Have a Red Bull first
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Thank you Ellie

      Best Wishes

      Rachel
      MND Connect
      MND Connect
      Contact us on 0808 802 6262 or at [email protected]

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        #4
        Yes Ellie I know, if you look you will see that it takes you to a much shorter clip only a few minutes long of highlights.

        There are a number of other longer clips but none that I have been able to find which feature Prof. Shaw.

        Don't really understand Red Bull along with Twitter, Amazon Prime, Android Systems and i Phone 7 don't know why I used to be well up on Watney's Red Barrel, tappets, VHS recorders and Scart leads!

        Stuck in a chair today, really bored!

        John

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          #5
          Rachel, check it out, tell me if I'm wrong.

          John

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            #6
            Originally posted by John14 View Post
            Rachel, check it out, tell me if I'm wrong.

            John
            Hi John

            It's the 3rd video down that is Dame Prof Shaw's presentation. Is this the one that you are having problems with?

            Best Wishes

            Rachel
            MND Connect
            MND Connect
            Contact us on 0808 802 6262 or at [email protected]

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              #7
              No John, it is her full presentation - over 1 hour of it.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                Yes Rachel sorted, thanks, could not see it before, I'll settle down for a good old view in a bit.

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                  #9
                  Originally posted by Ellie View Post
                  No John, it is her full presentation - over 1 hour of it.
                  Ellie,

                  Yes I can see it now, thanks ,

                  John

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                    #10
                    I've watched it now, not followed 100% but it's clear that there is good work going on in field of genetics which look likely to produce an effective therapy within as little as 5 years. It's good to see the efforts that are being made to overcome this ****** disease.

                    Set aside an hour or so to watch it after you have caught up with yesterdays hour long Archer's trial verdict, good news there as well.

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