Hello
I am new to the forum, and am hoping someone could advise me. My mum was diagnosed with MND with FTD about 2 months ago, and we started noticing things weren’t right about 6 months ago. Things have developed at an alarming rate. Eating and drinking is a major issue, and mum will have a PEG next month. My mum’s speech is just limited to single words at best. My mum’s mobility is ok, but she is very slow and frail. The most heart breaking aspect is the dementia side, which has developed rapidly.
My mum was the most independent person I know, bringing up 3 kids for about 27 since my Dad past away from cancer. She did live on her own until about 7 weeks ago, when it became unsafe. She was eating foods making her choke, confusing dates and times, crossing busy roads ignoring crossing, leaving the gas on the hob, amongst other things. Sadly, since she has lived at my sister’s the dementia side has gotten worse, and with my sister’s 3 children its just not suitable for anyone.
My mum is currently staying for a week, in a care home. I know she hates it, and this is where we are struggling and the guilt is awful. I have a feeling what my mum needs just doesn’t exist, but if anyone does have any useful advice it would be much appreciated. It maybe we need to look into a couple of care homes, one for short term and one when my mum’s mobility does deteriate.
1. My mum is 65, so fairly young for a care home. Where she is staying at present she is at least 10 years younger than everyone, and she knows it too. If at all possible we would like to find a place that has people with a range of ages, and some closer to her.
2. My mum, sadly has a very short attention span, and struggles to initiate tasks, which is common with FTD. We do need a home, that is flexible and can get her involved with cooking, sewing maybe even gardening, and get her out and about. My mum has never been a person that would sit around and do activities like painting, playing games etc that most home offer. She really struggles in knowing how to fill her days, which is so sad to watch.
3. We have already had to move her from Wales to Leicester and are very reluctant to move her again. We struggled so much with the NHS in wales, whilst the contrast in Leicester is incredible. The MND support with LOROS and their nurses and doctors, and many others is brilliant and really want to avoid having to start again with another county.
If you have any suggestions, weather that be a care home, in house nurses I would welcome anything. I just want to give my mum the illusion she is independent, but she has someone there to make things safe. It might be an impossible question to answer I know.
Many Thanks
Tim
I am new to the forum, and am hoping someone could advise me. My mum was diagnosed with MND with FTD about 2 months ago, and we started noticing things weren’t right about 6 months ago. Things have developed at an alarming rate. Eating and drinking is a major issue, and mum will have a PEG next month. My mum’s speech is just limited to single words at best. My mum’s mobility is ok, but she is very slow and frail. The most heart breaking aspect is the dementia side, which has developed rapidly.
My mum was the most independent person I know, bringing up 3 kids for about 27 since my Dad past away from cancer. She did live on her own until about 7 weeks ago, when it became unsafe. She was eating foods making her choke, confusing dates and times, crossing busy roads ignoring crossing, leaving the gas on the hob, amongst other things. Sadly, since she has lived at my sister’s the dementia side has gotten worse, and with my sister’s 3 children its just not suitable for anyone.
My mum is currently staying for a week, in a care home. I know she hates it, and this is where we are struggling and the guilt is awful. I have a feeling what my mum needs just doesn’t exist, but if anyone does have any useful advice it would be much appreciated. It maybe we need to look into a couple of care homes, one for short term and one when my mum’s mobility does deteriate.
1. My mum is 65, so fairly young for a care home. Where she is staying at present she is at least 10 years younger than everyone, and she knows it too. If at all possible we would like to find a place that has people with a range of ages, and some closer to her.
2. My mum, sadly has a very short attention span, and struggles to initiate tasks, which is common with FTD. We do need a home, that is flexible and can get her involved with cooking, sewing maybe even gardening, and get her out and about. My mum has never been a person that would sit around and do activities like painting, playing games etc that most home offer. She really struggles in knowing how to fill her days, which is so sad to watch.
3. We have already had to move her from Wales to Leicester and are very reluctant to move her again. We struggled so much with the NHS in wales, whilst the contrast in Leicester is incredible. The MND support with LOROS and their nurses and doctors, and many others is brilliant and really want to avoid having to start again with another county.
If you have any suggestions, weather that be a care home, in house nurses I would welcome anything. I just want to give my mum the illusion she is independent, but she has someone there to make things safe. It might be an impossible question to answer I know.
Many Thanks
Tim
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