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DLA Change to PIP

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    DLA Change to PIP

    I have just received a letter from DWP saying that my DLA is ending and I need to apply for PIP.
    It indicates I will need to have an assessment.
    Is this correct ?
    I understood MND patients had an automatic entitlement to high rate DLA without assessment.
    Does this not also apply to PIP ?

    Hi Derek,

    MND Connect aren't online atm. In the meantime, this link has some info that may be helpful.

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      Hi Derek,
      Unless your consultant has given you a DS1500 form you will be asked to have an assessment. I had one last year and missed out on the higher rate by 1 measly point! I applied for reevaluation this year and have had to go through the whole rigmarole again with the form filling and have been told I will need another assessment. I applied in October and still haven't heard anything the whole process is very slow. It's worth registering with them though as they will backdate the payment to your first enquiry.

      Some consultants will hand out the ds1500 for you anyway others will only provide you with them if your prognosis is 6 months or less.

      Good luck

      Wendy x


        Thanks Wendy.
        I'll have a chat with my neurologist.


          Thanks Ellie.


            Hi Derek,

            As Wendy explains unless you are applying to PIP under the special rules, which you can do with a DS1500, then you would have to go for a face to face assessment. This assessment would then determine which rate you will get of the PIP as a diagnosis of MND does not automatically entitle somebody to receive the higher rate.

            If you do have any problems with the transition of DLA to PIP or if for any reason get declined for PIP please do let us know, either via email on [email protected] or by telephone on 0808 802 6262.

            Also, we have further information about changing from DLA to PIP on our website which can be found here

            Best Wishes

            MND Connect
            Contact us on 0808 802 6262 or at [email protected]


              Ask your neurologist to write a strong letter explaining your current condition and the course that MND is expected to take.

              DWP must consider your case on current and future needs.

              My neurologist did this for me when I asked DWP for a reassessment for my mobility - from the low to the higher rate. DWP accepted the specialist assessment and surprisingly increased my rate of daily living allowance from low to high too - even though I had not asked specifically for DWP to do so. My reassessment period also went out to 3 years.