I have bulbar onset ALS and recently have had a PEG fitted. I am finding it very difficult to swallow anything now - I manage one cup of tea (with thickener) per day and maybe a little white bread and cheese. My main problem though is huge amounts of secretions from my throat - every time I try to swallow something I get a huge amount of stuff coming from my mouth - I think I"m spitting out far more than I"m taking in. I contacted the forum and was recommended Mucodyne - I've been taking it for a couple of weeks now but so far no result. How long should it take to take effect? I'm taking 10ml 3 times per day - should I up the dose?
I'd be grateful for any help you can offer - I'm finding it difficult to go out and see people, I feel so embarrassed at all the coughing and spitting.
I'd be grateful for any help you can offer - I'm finding it difficult to go out and see people, I feel so embarrassed at all the coughing and spitting.
Comment