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    #16
    Originally posted by mags55 View Post
    Hi Rachael
    I've had faciculatios for over three years, they were my very first symptom. They have never stopped. The past year, in my legs especially, they are huge ripples, people see them from the other side of the room. I've tried several meds, that don't work including quinine.
    Is it worth me asking for more drugs to,try? Because they never stop.
    Many thanks
    Mags
    Hi Mags

    If the fasiculations are bothering you then it is certainly worth speaking to either your neurologist or your GP to ask to try a different medication. It can take a bit of trial and error in finding the right medication at the right dose to improve the fasiculations.

    Best wishes

    Rachel
    MND Connect
    MND Connect
    Contact us on 0808 802 6262 or at [email protected]

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      #17
      Hello Kevin,

      I just want to say that it is possible to have Bulbar Onset PLS. My husband has this as a tentative diagnosis as, so far, he has no LMN damage.

      i wish you all the best.

      Zeb.

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        #18
        Hi Zeb
        So every classification of mnd has a pls equivalent . MND has no definitive test they test for everything else if you ain't got that you have MND . When you look at it that way it shows how little they know .
        Thanks for info zeb it's so nice to have a possible.

        Kevin

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