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My symptoms

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    My symptoms


    Hoping someone could help. I’m experiencing constant widespread body fasciculations, head to toe including eyelids. They are becoming more frequent and are very intense in my calves and feet. I’ve had these symptoms for 8 months, but no weakness. I’ve had 3 emgs, all came back normal alongside several normal clinical examinations. I’ve seen 3 neurologists, all have diagnosed me with benign fasciculations. My grandad died from mnd at the age of 75, so I am very concerned this is mnd and I have a very aggressive form starting all over.

    I thought this forum was for people only
    diagnosed ?


      Hello Coxl3 and Welcome to the Forum.

      As a new member, you may not be aware of the Forum Guidelines, which can be found by clicking its tab on the end of the page, the first of which is:

      "Forum Guidelines

      This forum is an online community for people living with or affected by MND to share experiences and support one another. It is also a safe place where people who are experiencing symptoms or awaiting diagnosis can ask questions and express their concerns."

      Occasionally people post and seek help, especially on this MND Connect sub-forum.

      Take care.

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.


        Please ask/demand of your lead consultant, a gene test Joshua. I understand your fears and they must be acted on. The gene test will reveal your susceptibility to MND, particularly if there is family history.

        Please don't be intimidated by other users. You have an automatic right to this forum as a past carer in any event.
        Copyright Graham