Tears stinging when I cry

[Doodles]

Hi all
I have not been diagnosed, but have seen a neurologist regarding my worries, who gave me an all clear examination and refused to do an EMG. I do have multiple sclerosis.
I am rather worried about something I have read and it's when I cry, my eyes sting. They call this 'acid tears' in relation to mnd.
This has happened today, where it felt I had chemicals in my eyes.
I have had twitching muscles since November also, which neurologist said are benign.
I don't know whether I should be concerned about this tears symptom or not?
My speech has been off since March, but neurologist I saw in June said speech was fine.
Thanks for reading

[DeeH]

Hi

My mum has stinging eyes (she has dementia) plus over production of tears for no reason

She gets liquid tears and eye drops, prescribed by the GP

It helps, plus vasiline or barrier cream around the skin around the eye as it makes the skin very very sore

[Broostine93]

Hi Doodles,

My Gran had something similar to this. She would over-produce tears and had frequent skin infections around her eyes (and, strangely, ears). The GP prescribed an antibiotic cream for this, which usually cleared the problem up within 2 weeks. Worth a chat to your GP, if you can

[Doodles]

Hi
Thank you Dee and Broostine for your reply
Do your mum/gran have mnd then?
I am very concerned because of what I have read, and that stinging eyes/tears is a symptom of mnd because it alters the pH levels.
I spoke to a lovely lady from the mnda who said she had never heard of this symptom.
I have no other symptoms that I can feel, no failure of muscles, unless my speech is failing me in that my speech has been odd for 5 months.
Neurologist has examined me and heard me speak and gave me the all clear, wouldn't do EMG, but this eye stinging has happened since I saw him and don't want to contact him and ask what he thinks.
Thanks for reading, any feedback greatly appreciated.

[matthew55]

Well I was diagnosed back in May with Bulbar onset and I have to say my tears don't sting. Consider that everything, and I mean everything dies. x

[DeeH]

Hi

It can be an age thing for some people.

The reason why the ears get sore, is during sleep.
The tears run from the eyes sown the face to the ears, at night.

[Doodles]

Hi Matthew
Thank you for responding, I appreciate it.
I am sorry about your diagnosis, do you mind me asking, is your speech affected?
My speech has been off for 5 months, neurologist I saw in June said my speech is good, but I trip up during conversations, I can hear it, but no one else can!!
I have asked gp to refer me for a second opinion but they have said no, so I feel like I am stuck in limbo.
Keep safe
Issy

[Doodles]

Hi Dee
Thanks for your reply, appreciate it. Sorry to ask but does your mum have mnd? Im asking because of my eyes, and that I googled it and it came up with it can be a symptom, I am rather concerned but gp won't refer me back to neurologist
Thanks
Issy

[matthew55]

I'm almost mute mate 😀x

[Tess]

I didn't know this was a thing. I mean I've had a least two episodes of far too much crying for one night and my eyes were real stingy and almost looked swollen, but I'm not the one with MND it's my partner (somehow he's managing his crying levels much better than me).

I hope you find some answers Doodles.

[Broostine93]

Hi
Thank you Dee and Broostine for your reply
Do your mum/gran have mnd then?
I am very concerned because of what I have read, and that stinging eyes/tears is a symptom of mnd because it alters the pH levels.
I spoke to a lovely lady from the mnda who said she had never heard of this symptom.
I have no other symptoms that I can feel, no failure of muscles, unless my speech is failing me in that my speech has been odd for 5 months.
Neurologist has examined me and heard me speak and gave me the all clear, wouldn't do EMG, but this eye stinging has happened since I saw him and don't want to contact him and ask what he thinks.
Thanks for reading, any feedback greatly appreciated.

Yes, my Gran had MND. The eye issues only started about half way through the progression of the disease (so she'd already lost the use of her legs, swallow was half gone, both arms were on the way out and speech was all but gone). I wouldn't class this as one of the first symptoms (probably not even a symptom- might be a side-effect of some/one of the medications she was on perhaps). Good luck and try not to catastrophise (easier said than done, I know)

[petermessi]

I am also diagnosed with this problem.Let hope for the positive outcome of this problem and speedy recovery

[Guy2001]

My wife was diagnosed with MND last year and has developed this symptom in recent months. It's the first time I've heard it described as related to MND, and we've been wondering about this since it started. I will have to ask our consultant nurse at Queens Square about it and see what she says.

[MNDConnect]

Hi Doodles,
Firstly, please accept my apologies for not responding to your post sooner.
It is reassuring that your neurologist gave you the all clear in relation to your concerns about MND. However, I was so sorry to hear about the problem you have developed with your eyes. This is not a symptom we are aware of being linked to MND. However, given that you have MS, it might be advisable in the first instance to discuss this symptom with your GP or your specialist nurse, if you have one. As I understand that in some people with MS, if the nerves in the eyes are affected, this can cause inflammation, leading to symptoms.

Another source of support and information is the MS Society. You may find it helpful to contact their helpline for support 0808 800 8000, or alternatively you could contact via email - [email protected]
I do hope this information is helpful.
Kind regards
Ruth