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Help with travel to hospital appointments

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    Help with travel to hospital appointments

    Hi all,
    My Nan has an appointment at Barts hospital in London soon, but it's about a 30 mile drive. We can't get the train due to logistics and don't want to drive ourselves due to parking etc.
    So we're planning on getting a taxi each way but it'll be very expensive. Does anyone know of any travel assistance or funding that can help with trips like this?
    Thank you,


    Hi Katie

    I have a number of suggestions:-
    • contact your local MNDA branch for help. If you donโ€™t know where they are contact the main office on this site
    • contact you Nans GP as they may have details of local support services
    • and finally contact the hospital they usually have a pick up service




      Since my diagnosis I have been given taxis by my Hospitals Trust. It is worth talking to them. ๐Ÿ™‚x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx


        Hi Katie

        The Royal Voluntary Service runs a volunteer car scheme in many areas where a volunteer will pick someone up and drive them to their hospital appointments. You can find more information about this scheme on their website here https://www.royalvoluntaryservice.or...nity-transport

        We do have a Quality of Life grant which can be used to pay for taxis. You would need to complete one of our application forms and provide a written breakdown of the cost of the taxis. You can download an application form on our website here

        Best Wishes

        MND Connect Adviser

        MND Connect
        Contact us on 0808 802 6262 or at [email protected]


          Hi Katie Jane, not from your neck of the woods but I think "Patient Transport" is readily available across the country, we now have to use this service as Albert wont ever get in a car again.

          Top tip!! - if you want someone to travel with you have to say "Medical Assistance is required" (this could be toileting) as at the moment carers cannot travel - negatives: you have to be ready 2 hours before appointment time, and it can take up to 1.5 hours to get them to collect.

          Have to plan 2 working days ahead of any appointment. You will need your Nans unique NHS number - will be on any letter.

          Albert feels safer as the last time we tried it on our own he fell between his scooter and the car - that took responders 2 hours to get him up and it was their suggestion moving forward we use the transport.

          Hope this helps

          Husband Albert diagnosed PMA Feb 21


            For all you power chair users - next time we have to go to hospital in the Patient transport vehicle can Albert use his power Chair?
            Husband Albert diagnosed PMA Feb 21


              Hi Sue,

              We don't use hospital transport but I have seen people in powerchairs waiting for transport after the clinic at Seacroft. They ask if we need transport as we leave. Hopefully Albert will feel safer in a WAV in his powerchair.. I know I do as I had some very dodgy transfers before.

              Love Debbie x