Stiffness in chest and hips

[Bern]

Hi everyone,
I'm not sure I'm describing this well but here goes.
About 3 weeks ago I started getting a heaviness or stiffness in my chest when lying down on my back. About 7 days ago, the same thing started in my
ribs. Last night, it started in my ribs when lying on my side. I'm fine when sitting. No evidence of it during the day.
Bern x

[Streetwise]

Do you have to sit forward , if you listen to your breathing do you wheeze? How have you exerted yourself over the last few weeks ?have you used your upperbody more than usual?as the weather is got cooler do you have enough covers over you when you sleep ? Does your pillow support you ? Is your mattress old? Ideas 💡

[Dude]

Hi Bern I had what you describe a few years ago. I just put it down to progression, but it went away. Dude x

[Terry]

Hi Bern;

It might be worth getting your chest listened to and the other things that Streetwise says could be relevant to.

Like Dude says, we do have strange things happen like this for no apparent reason. If it does not go and your chest is clear maybe a relaxing type drug might help.

Love Terry

[MNDConnect]

Hi everyone,
I'm not sure I'm describing this well but here goes.
About 3 weeks ago I started getting a heaviness or stiffness in my chest when lying down on my back. About 7 days ago, the same thing started in my
ribs. Last night, it started in my ribs when lying on my side. I'm fine when sitting. No evidence of it during the day.
Bern x

Hi Bern

I think it's worth having this checked out by your GP even if it's only for peace of mind. There are various things that could cause it and it's always a good idea to get any persistent symptoms checked out.

Best Wishes

Rachel

[Bern]

Thank you everyone. I immediately thought it was progression. Lots of different things for me to consider now. You've made me feel happier.
Just one question - what is an example of a relaxing drug?
Thanks again,
Bern x

[Bern]

Hi Rachel,
Thank you. Seeing my GP is easier said than done. I'd have to ring on Monday, wait for a nurse to ring me back and then she decides if I need a GP appointment!
Have had to beg for a flu jab.
I think there should be some basic training for GPs about MND.
Bern

[Terry]

Hi Bern;

I quite often take half mg of Lorazepan, it's more for anxiety if you have breathing problems but it does relax as well.

Always be led by your specialist or maybe GP.

There is quite a bit of information for GP's from the Mnda as well as a forum for professionals. There are some simple leaflets for them as well that you can get from the Mnda.

Love Terry

[Bern]

Hi Terry,
Thanks. I'll take a look for info for GPs. Maybe I could take some leaflets into the surgery.
Bern x

[Terry]

Hi Bern;

I think that the booklet is here and the Mnda can sent it:-
https://www.mndassociation.org/wp-co...care-teams.pdf

And there main page is here:-
https://www.mndassociation.org/forprofessionals/

And:-
https://www.mndassociation.org/forpr...ation-for-gps/

Love Terry

[Bern]

Thanks Terry. That’s a great help.
Bern x

[Streetwise]

Hello Bern ! My mams GP had seen three people in 30 years with motor neurone disease ,that was 20 years ago ,I don't know how it's changed -I'm in Sunderland Tyne and Wear, I don't know if that makes a difference !

[Annb]

I so agree about GPS having more training. I have a really great GP but I found him lacking in his knowledge of MND. I have been told this is because the illness is rare. Likewise The Consultants at my local hospital are generalists and they inspire me with confidence because they do not do what they say they will do. They offered beyond the MEG test which was done for an unrelated illness. I have referred myself to a London Hospital and that has proved a success as the Consultant is a specialist and can answer my questions. However the distanca away worries me. I am told that the local Multidisciplinary Team hold meeting to discuss MND sufferers but no-one ever examines me or asks me about new symptoms. I really do not know who the people in the MT are. I feel very alone at times. Other this forum Ihelps me to understand what symptoms are important and which to ignore. I feel I am deterationg but have no idea if I am. I live alone and find going out is becoming difficult as I am losing the use of my right hand/arm and my walking is difficult. Sorry if I feeling sorry for myself but am having a bad day.

[Annb]

The MNDA sent my GP a pack. However, my GP seem to rely on the MD Team and letters sent to them from Consultants as to how to treat symptoms. This causes delays in getting a drug prescribed if at all.

[Annb]

My London Consultant told me that the average GP may see one MND sufferer in his career. Referrals to a Specialist seems to be up to the local Trust.