Announcement

Collapse
No announcement yet.

Stiffness in chest and hips

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #16
    Hi Annb;

    Sorry to hear that you don't have much contact with Mnd specialists and that you are down at the moment. It's fine to post your woes her and have a rant if you feel that way.

    I guess you have contact with the Mnda and I would be tempted to email Mnda connect and tell them of your situation and they might be able to sent an AV association visitor out to guide you.

    I don't know if you go to a hospice but they normally provide one day a week for a while and they are great places for help and info.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

    Comment


      #17
      Hello Annb I remember my mam being moved by a carer and they wrenched her shoulder ,I panicked and said you've got to take her to the hospital ,when we arrived the doctor examined her !but unnervingly said there is nothing we can do for you ,again that was 20 years ago ,I honestly think they are just poking around in the dark.
      I think it's a postcode lottery, it depends on what postcode you are in -what help you get our local hospital is useless for diagnosis .
      We were never told anything about how my mams symptoms ,when we went to the RVI all They really did was weigh her and prescribed high calorie drinks.
      I think they were just using her as a guinea pig ,gathering information .
      Fortunately my mother was very intelligent so she diagnosed herself ,she probably knew exactly what her symptoms were but couldn't communicate it to me .
      If you can't manage the journey don't do it my mother tried , it was obvious it was just too much and we shouldn't have done it .
      Last edited by Streetwise; 15 October 2017, 15:32. Reason: iPad

      Comment


        #18
        Morning all

        As has been mentioned, we do produce a GP booklet aimed at teaching GPs about MND. If anyone would like a copy sending to their GP then please PM us or email us at [email protected] and we will arrange this.

        The booklets go out anonymously so they don't include any patient details. We would just need to know the name of the GP and the surgery details.

        Best Wishes

        Rachel

        Comment


          #19
          Thank you, Rachel. I've emailed with the relevant details.
          Bern

          Comment


            #20
            You are very welcome Bern. That's all sorted for you and it should be with the GP in a couple of days

            Best Wishes

            Rachel

            Comment


              #21
              Thanks!

              Comment

              Working...
              X