Speech

[Jaxx]

Is slurred/losing ability to speak occasionally a really bad sign, diagnosis was sept 2017 also weakness to left leg n hand

[Terry]

Hi Jaxx;

It is not a good sign but many of us did have early speech problems. It would be good to call the speech therapist to get advice and maybe a speaking machine.

Love Terry

[Jaxx]

Thank you she has an appointment with the speech therapist soon that is bringing equipment to voice bank as she has children 8 and 7 months.

[Guest]

Hello Jaxx, just thought this may help you. I was diagnosed April 2017. My speech is very slow & slurred, I also have weakness in my left leg & left hand. I recently saw my specialist & he was very pleased that my symptoms were not very much worse than the previous consultation. I asked if he thought I had a slower version of MND & he said he thought I did. I thought by telling you this it might stop you worrying so much. I sincerely hope this helps you.
Regards Maeve

[Jaxx]

Thank you so much it sounds like you have similar symptoms to my daughter that has made me feel better although I worry and cry most of the time.

[Guest]

Hi Jaxx,yes it does sound very similar to mine, that’s exactly what I thought when I read your post. Of course you cry a lot, I guess we all do. It’s a terrible shock & not an easy thing to accept. I must admit that my husband & I & our two grown up sons cried a lot immediately after the diagnosis. Since then , things have settled down a lot but we still have our moments,
I am sure you will find this website a great help to you, as there is always someone on here that has experienced whatever you are going through. If you don’t see what you are looking for, all you have to do is ask. Thinking of you. Maeve x

[Jaxx]

Hello Maeve thank you for your reply, do you ever find you cannot speak at all at times, when this happens to my daughter she just bursts into tears which sets me off too, sorry to keep questioning x

[Terry]

Hi Jaxx;

If she tries to speak a lot slower and sometimes split the words up, it might be understood better and easier to say.

I have to think of what words I can pronounce and then try to say them but even after four years, I still don't know what I can or can't say. I still think that I can sing and say anything. Crazy.

Love Terry

[Guest]

Hi Jaxx
yes there are times when I am unable to get the words out at all & it’s frustrating & very upsetting, it’s not surprising you both cry, it’s a huge trauma & you don’t know what is going on. As Terry says, he thinks he can still sing & say anything.
In my head I still think I am going to speak normally & it comes out slurred & slow. Please don’t worry about asking any of us anything, we are all happy to help you & we all understand what you are going through.
Maeve

[Jaxx]

Thank you so much, I keep hoping to wake up! X

[MNDConnect]

Dear Jaxx,

I am sorry to hear that your daughter has been diagnosed with MND recently and that she is experiencing difficulties with her speech.

About nine in ten people with MND may experience speech difficulty at some point in the course of the disease. As fellow members on the forum have explained, it is important that your daughter is seen and assessed by a Speech and Language Therapist (SaLT) at regular intervals. I am pleased to know that she has an appointment coming up with the SaLT and that she is considering voice banking. A SaLT can help people explore alternative ways to communicate effectively.There are various communication aids which can be used to enable someone to communicate when their speech is affected by MND. These can range from the very low tech such as alphabet boards or communication charts to the very high tech such as eye gaze systems. We produce an information sheet on speech and communication support that explains this in more detail. Please see the following link to access this document https://www.mndassociation.org/wp-co...on-support.pdf Additionally, we have further information about voice banking on our website which you may find helpful, please see the following link http://www.mndassociation.org/forpro...voice-banking/ Also, as an Association, we do have grants wherein we might be able to offer a financial contribution towards the voice banking process. This would be a one off payment of up to £500.

I do hope this is helpful.

If you have any further queries, then please do not hesitate to contact us again.

Kindest regards,
Prachi

[Lynne K]

My diagnosis was recent. My legs went first and my speech started slurring around the same time as the fingers on my right hand have become weak and that arm is also a bit weak. Mine is slow degeneration so far. It does seem to be a common symptom. I'm going to do voice banking while I my voice is still understandable.

[kevin]

Hi jaxx
Lost my speech 4 years ago . I do a no that everyone recognises but that's about it . Never argue any more you loose every time .

I miss the spontaneity. I have to type everything now it's ok but I am still slow typists. I use I pad and speak it app in house . I always use it on a stand that down position is not good on my throat . When I am out I use Samsung galaxy mini pad because it's light .

Two things I hate . People who finish off your sentences . Poeple who ask loads of questions while you are typing answer to first one then don't understand your answer

Hey great news Maeve slow progress is like a get out of jail card

[Guest]

Yes It was great news Kev, if I could skip I would have skipped out of there. . See you at the next meeting Maeve x

[Guest]

Hi Jaxx, I was diagnosed in October, as originally thought to have had a stroke (March 2017) as my speech was starting to slur. It has got worse over the few months and I have difficulty in being understood. I have a note pad and a card (credit card size) explaining my problem they are both from the MNDA via my speech therapist. I also received my IPad from the NHS outreach taem (EATS - Electronic Assistive Technology Service), it has a text to speech program "Predictive" which I have found quite good even on the phone. But as others have said you do tend to forget yourself sometimes and try speeking to fast, the sing has got bad but is a good laugh for my wife and I especially in the car. We both take every day as it comes with a sense of humour and positivity, we have to as we are over the moon to be great grand parents in August (we are only 61 & 62).