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    MNDA Meetings

    Hi;

    Could you give me a details of the Mnda meetings in Suffolk please? Also include the places, times and emails/phone numbers and the people that are running them.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

    #2
    Hi Terry,

    I don't know if this is of any use to you in the meantime?

    Suffolk drop in support meetings 2018For anybody affected by Motor Neurone Disease – all welcome!Feeling isolated?

    Unsure about support and services available?Come along to these informal get togethers where we will share ideas & support over a cuppa.

    People living with MND, families and professionals involved in supporting families are all welcome.MND Association representatives and nurse specialists will generally be on hand to advise.

    Meetings in West Suffolk will be held on:
    Wednesday 3rd January 12 – 2pm *light lunch will be provided
    Wednesday 7th March 2 – 4pm
    Wednesday 2nd May 2pm-4pm
    Wednesday 4th July 2pm-4pm
    Wednesday 5th September 2pm-4pm
    Wednesday 7th November 12-2pm *light lunch will be provided
    (*light lunch to be provided in January & November so an idea that you are coming would be helpful)

    Hawstead Village Hall, The Green, Hawstead, IP29 5NP.
    To note your intention to come please mail Janet Oliver on [email protected] or contact WestSuffolk Neurological Nurses, Nicky McGreavy or Sarah Ward - 01284 748848.


    The Ipswich support groups will be held on:

    Monday 19th February 5 - 7pm
    Monday 16th April 5 – 7pm
    Monday 18th June 5 – 7pm
    Monday 20th August 5 – 7pm
    Monday 15th October 5-7pm
    Monday 17th December 5-7pm

    The Atrium, St Elizabeth Hospice, Ipswich.

    For the Ipswich meeting please contact Kate Barber on 01473 707962
    Suffolk MND Association contacts are Janet Oliver 01359 241084 and Liz Cooper 0345 375 1827
    Suffolk Direct (for access to social care services) 0808 800 4005


    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

    Comment


      #3
      Thanks Ellie;

      That's exactly what I wanted. I guess that I was too lazy, you know what cats are like.

      Love Terry
      TB once said that "The forum is still the best source for friendship and information."

      It will only remain so if new people post and keep us updated on things that work or don't work and tips.

      Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

      Comment


        #4
        Typical of you Terry. Whilst you’re lazing around Ellie is monkeying about on the website for you.

        Love
        Barry
        I’m going to do this even if it kills me!

        Comment


          #5
          Hi Terry,
          With regards to local support. Please see the following link which contains information about the MND support group meetings in Suffolk.

          https://www.mndassociation.org/wp-co...tings-2018.pdf

          For further information about the group please contact Janet Oliver. Janet is the Suffolk group contact and she can be contacted on 01359 241084 or by email: [email protected]
          I hope this information is helpful.
          Kind regards
          Ruth

          Comment

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