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    Opinion needed (if allowed)

    Good morning,

    Firstly, I apologise if this isn’t allowed, if so please feel free to tell me if that’s the case.

    I just wanted some opinions on my symptoms.
    I have had twitches occasionally over the last year (as most people do) however over the last month or 2 they seemed to increase. My main concern is that they are all in my left shoulder, arm and hand. They are not constant, just a few times a day.

    I had a bit of twitching in the muscle between thumb and pointer finger that moved my finger slightly, on and off for a day. Then a week later I had 2 twitches down the side of my hand. Then that day, 2 twitches on my shoulder. Last night I also had 2 twitches on my forearm. They are in quick succession.

    I (think) there is slight wasting on my hand as it is not as ‘muscly’ as my other, down the side near my pinky and between thumb and pointer finger. However it is my non dominant hand and I also haven’t paid any attention to it before these symptoms so can’t be sure.

    On top of this I have the occasional ‘pop’ in other areas of my body. But the localisation is what’s concerning.

    I’ve had full bloods done which came back fine. Do you think I should be concerned? To be honest it has got me a bit panicked (again, as it’s all in one place).

    Thanks in advance!

    Not sure if relevant - I had viral meningitis on November and I’ve heard (however accurate ok not sure) that this can have a link to MND/ALS
    Last edited by Sibbo84; 11 February 2021, 10:23.

    #2
    With my husband mnd started with falls and increasingly poor mobility. When we went to the GP I would ask why his knees were so red. Now I realise it was due to poor circulation caused by muscle wastage.
    My husband didn't have any symptoms you describe.
    Good luck.

    Comment


      #3
      Thank you so much for your reply and sorry to hear about your husband.

      Comment


        #4
        Hi Sibbo84

        I'm sorry that you are concerned about your symptoms. Have you spoken to your GP about your concerns? Twitching is very rarely an initial symptom of MND. The vast majority of people with twitching and no signs of clinical weakness do not have a serious underlying cause and are at no more risk of developing MND than anyone else.

        Best Wishes

        Rachel
        MND Connect Adviser

        MND Connect
        Contact us on 0808 802 6262 or at [email protected]

        Comment


          #5
          Muscle weakness was the first signs I had of eventually being diagnosed with MND, the twitching came later.
          Diagnosed 2nd Jan 2020
          Both arms/shoulders affected, left worse than right.
          Progressive Muscular Atrophy suspected

          Comment


            #6
            Originally posted by MNDConnect View Post
            Hi Sibbo84

            I'm sorry that you are concerned about your symptoms. Have you spoken to your GP about your concerns? Twitching is very rarely an initial symptom of MND. The vast majority of people with twitching and no signs of clinical weakness do not have a serious underlying cause and are at no more risk of developing MND than anyone else.

            Best Wishes

            Rachel
            MND Connect Adviser
            Thank you for your response Rachel.
            It sounds silly but I am waiting for my life insurance to go through (not due to this, purely coincidental that I was reviewing at the same time as my mortgage renewal) just in case anything is wrong.
            I did speak to my GP about some back pain and mentioned to the physio guy about twitching. He asked me the usual questions about balance, grip etc. And that was it. The twitching is very few and far between but definitely present and visible. I’ve also had it on my right eyelid. And occasionally on my face...I think (it seems to feel different).
            Thanks
            Sara

            Comment


              #7
              Originally posted by Beemer View Post
              Muscle weakness was the first signs I had of eventually being diagnosed with MND, the twitching came later.
              Thank you for taking the time to respond and very sorry to hear about your diagnosis.
              I don’t seem to have weakness (or just a ‘feel not fail’ situation) but will monitor. I’ve just read about twitches in MND/ALS and because they are localised, it seems strange.

              Comment


                #8
                Same here, my voice changed and twitching came in after a few months. Seek professional advice. 👍
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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